MightyMan Half Iron Distance Supports HNF
Join HNF at the MightyMan Half Iron Distance in Fort Pond, Montauk, NY October 1st.
Calling All Team CMT Members!
Join Team CMT and be part of an international effort to change the future for those living with CMT!
Summit Panelist Spotlight: Team CMT Founder Chris Wodke
The Hereditary Neuropathy Foundation’s Team CMT Founder and Manager Chris Wodke is changing the face of Charcot-Marie-Tooth one mile at a time. Chris is an accomplished triathlete, marathon runner, and cyclist. And she has Charcot-Marie-Tooth. Diagnosed in 2010, Chris...
Meet Molly: A True CMT Warrior
Kassandra is riding in the TD Bank Five Boro Bike Tour to support her friend Molly and help HNF raise funds for CMT research. She loves new experiences and is ready to tackle all 5 boroughs in one day by bike! Her sister Faith is riding by her side in support of CMT...
Ride For Charcot-Marie-Tooth Awareness & Research: 2016 TD Bank Five Boro Bike Tour
The Hereditary Neuropathy Foundation (HNF) is thrilled to participate as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour for the fifth year in a row. This is an extraordinary event where participants bike through all five New York boroughs to help increase awareness and raise dollars to fund Charcot-Marie-Tooth (CMT) research.
Update on Michael Watkins – Team CMT Member
Michael Watkins completed the Leadville Trail 100 MTB race on August 15, 2015 in Leadville, CO. The trail race is widely considered one of the toughest mountain biking races in the country. Michael has been logging 200 – 225 miles on the bike each week to...
My last month in numbers
It has been entirely too long since I’ve updated my blog and so much has happened since late April. I thought I would share some info on what I’ve been up to since my last post on April 29th Miles Ridden: 1,013.81 Time spent on a bike: 77 hours, 04...
Bike NY Spotlight: Kristin Gelzins
Growing up, I was an all star softball player and an avid runner. Nothing could hold me back from just about anything, from skiing to hiking, biking and kayaking. I was in school to get my nursing degree while I worked as an EMT which I loved doing. When I was 21...
Team CMT Takes on the Bermuda Triple Challenge
Meet Team CMT member Bill Morgan. Bill and Liz (his wife) recently ran three races back to back in Bermuda for Team CMT. “Let us run the risk of wearing out, rather than rusting out.” – Teddy Roosevelt Our first race as Team CMT members was the Bermuda Triangle...
Sunday May 1, 2016: 2016 TD Bank Five Boro Bike Tour
HNF is thrilled to have been chosen for the fifth year as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments...
Member Alyson O’Connor Won’t Let Her CMT Stop Her!
Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.
