HNF will be participating in the Million Dollar Bike Ride for the 1st time this year on Saturday, June 8th in Philadelphia, PA.
HNF is proud to be a charitable partner for the following three events in 2019.
Join us on Saturday, April 6th at 7:00pm at CoolMess Roslyn, New York. All proceeds will go towards the TRIAD program.
Love, Sex & Disability Revealed in Groundbreaking New Documentary by Ben Duffy
Global Genes, in partnership with the University of Pennsylvania School of Medicine Orphan Disease Center, will host the 2018 RARE Patient Advocacy Symposium in Philadelphia on May 19th, 2018.
HNF will be holding a landmark externally-led Patient-Focused Drug Development Meeting for CMT and INs in Washington, D.C. on Friday, September 28, 2018.
HNF is pleased to announce that Courtney Hollett has been named Executive Director.
Help support this ground-breaking PFDD CMT Meeting being held on September 28, 2018 in Washington, D.C.
We had another amazing turnout for our 9th annual Grace’s Courage Crusade fundraiser for CMT2.
On November 3, 2017, nearly 100 participants gathered in Boston for HNF’s Patient-Centered CMT/HNPP Pain Summit.
On September 9th, The Rochester Chrome Divas hosted a Scavenger Hunt to raise money for CMT6 research.
The TD Bank Five Boro Bike Tour will take place on May 6, 2018. Come join us!