CMT Readers Club: Stories that See EveryBody

by | Aug 18, 2025 | 0 comments

CMT Readers Club: Stories that See EveryBody

A National Disability-Inclusive Storytelling Program for Schools

Launched by the Hereditary Neuropathy Foundation (HNF) and the CMT Dream Team, the CMT Readers Club is a joyful, nationwide movement designed to spark empathy, foster inclusion, and raise awareness about disabilities like Charcot-Marie-Tooth disease (CMT).

Through the power of storytelling, real-life advocates bring disability-inclusive books into classrooms—helping kids see difference in a positive light and shaping the next generation of allies and changemakers.

👉 Sign up for the CMT Readers Club here

Why the Readers Club Matters

Most children rarely encounter disability stories in their school curriculum. The CMT Readers Club changes that by:

💬 Creating safe, meaningful dialogue about disability in the classroom

💡 Encouraging curiosity, empathy, and understanding

📚 Adding inclusive books to school libraries

🌍 Amplifying voices of people living with CMT and other disabilities

💙 Raising funds for research, support, and advocacy through HNF

When kids meet real people with disabilities—through story, conversation, and heart—it changes everything.

How It Works

For Schools:

  • Request a visit using our online form
  • Receive a curated children’s book from our inclusive reading list
  • Welcome a trained CMT Readers Club volunteer (virtually or in person)
  • Share classroom reflections and photos with HNF

For Readers & Advocates:

  • Complete our signup form & download the school outreach email template
  • Join a brief intro and training call with HNF
  • Receive your book, talking points, and activity guide
  • Visit a classroom (virtual or in-person) to read and lead discussion
  • Share photos, reflections, and optionally launch a small fundraiser to support CMT research

Every visit is an opportunity to inspire kids—and to grow awareness for CMT across the country.

Included Resources

Readers and schools receive:

  • A disability-inclusive children’s book from HNF’s pre-approved list
  • A discussion guide tailored by age group
  • Worksheets and take-home activities
  • Outreach email templates for schools
  • A simple guide for starting an awareness fundraiser

Age-Appropriate Activities

We’ve designed activities for different grade levels so every child can engage:

  • Grades K–2 Coloring pages, “Same & Different” picture sort, and kindness clouds
  • Grades 3–5 → Disability awareness crossword, empathy reflection sheets, and myth-busting games
  • Grades 6–8 → Accessibility audits, disability-in-media analysis, and creative reflection projects

Be Part of the Story

Together with HNF and the Dream Team, we can build a future where every child learns that disability is not something to fear or pity, but a beautiful part of the human experience.

👉 Click here to sign up for the CMT Readers Club today

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Related Blog Posts

Allison Moore is going to be published!

HNF’s CSO (Chief Scientific Officer), Sean Ekins wrote a blog about his work with Allison Moore and her two “fighter Mom” friends Lori Sames and Jill Wood. He named his blog: “Rare disease heroes – Extraordinary collaborators we should be listening too.” Sean helped my friends and I write a paper called: “Multifaceted roles of ultra rare and rare disease patients/parents in drug discovery.” YES, Allison Moore is going to be published! It will be in Drug Discovery Today, soon. The link to the reprint is below.

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