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Latest News and Articles
- A Passionate Plate
- A Passionate Plate: No Bake Banana-Peanut Butter Granola Bars April 1, 2013
- Berries with Limoncello May 8, 2013
- Advocacy
- CMT Awareness Month–Advocate! November 21, 2011
- HNF Signs Coalition Letter to Congress December 12, 2012
- Meet Abby Ziff, Sales Director, Strategic Accounts, WebMD. April 1, 2013
- Canine Companions for Independence (CCI) has provided trained assistance dogs for children and adults with disabilities since 1975 May 8, 2013
- Arlene
- Arlene On the Scene Sequel! October 25, 2012
- Arlene On the Scene: Barrington Books Fall Festival October 25, 2012
- March 2013: Arlene sequel available! January 8, 2013
- School Outreach Program and Team CMT Kids February 21, 2013
- School Outreach Program Update March 21, 2013
- School Outreach Program Spreads Its Message Nationwide April 30, 2013
- Awareness
- Women’s Group Blog for CMT Awareness: The Fab Five September 19, 2012
- HNF Media Partner: World Orphan Drug Congress USA February 22, 2013
- BERNADETTE SCARDUZIO: The Face of Charcot-Marie-Tooth Disease April 1, 2013
- One Woman’s Success with Surgery April 1, 2013
- Bike New York
- Spotlight: Bike New York Riders February 24, 2012
- May 5, 2013: Five Boro Bike Tour March 18, 2012
- A Great Ride at Bike New York May 13, 2012
- HNF Charity Partner: TD Five Boro Bike Tour May 5, 2013 January 7, 2013
- Clinical Therapeutic Research
- HNF to fund promising research on Charcot-Marie-Tooth December 18, 2011
- Coming Events
- HNF Charity Partner for the MetroTex Charitable Trust Run For Fun Irving, Texas: Saturday May 3, 2014 January 20, 2013
- January 31, 2014 – Bridge/Brunch Fundraiser February 10, 2013
- Sunday, November 3, 2013: Grace’s Courage Crusade Brunch February 13, 2013
- SAVE THE DATE: 8TH ANNUAL HNF GOLF EVENT: THE DICK SHARPE MEMORIAL GOLF OUTING May 1, 2013
- Drug World Conference
- HNF Media Partner: World Orphan Drug Congress USA February 22, 2013
- “Fighter Mom’s” Join Forces February 27, 2013
- Events
- New York Times features Voice of CMT September 3, 2011
- September is CMT Awareness Month September 14, 2011
- AANEM conference September 17, 2011
- Podiatry Meeting in NYC September 28, 2011
- Spin-a-thon 2011 October 24, 2011
- Grace’s Courage Crusade Brunch 2011 October 30, 2011
- Running Marathons to Raise Awareness of Charcot-Marie-Tooth November 17, 2011
- December 1-3, 2011 – Champions for Charity November 20, 2011
- Charcot-Marie-Tooth Awareness: In the News! December 15, 2011
- March 31, 2012–Spin for the Cure, New Jersey! February 15, 2012
- Thursday, November 29th – Saturday December, 1st Shop Til You Drop Americana Manhasset, New York February 24, 2012
- Spotlight on the Mattheiss Family February 24, 2012
- Spotlight: Bike New York Riders February 24, 2012
- Thursday Sept. 27, 2012: Seventh Annual Golf Outing March 13, 2012
- Saturday, Nov 10, 2012: Richmond Half-Marathon Fundraiser March 13, 2012
- May 5, 2013: Five Boro Bike Tour March 18, 2012
- April 16, 2012: Team CMT Leader to Run Boston Marathon March 31, 2012
- First Spin-a-thon of 2012 a Smashing Success! April 1, 2012
- June 3, 2012: Wine, Beer and Vodka Tasting April 1, 2012
- Team CMT leader finishes second at Boston Marathon April 23, 2012
- A Great Ride at Bike New York May 13, 2012
- July 28, 2012: Hamptons Spin-a-thon & Party! June 1, 2012
- Fundraiser for CMT Awareness a Huge Success June 15, 2012
- Personal Profile: Nick Zappola July 12, 2012
- Team CMT: Monthly Family 5K Fun Run July 12, 2012
- Hampton’s Spin 2012: Booming Success August 13, 2012
- Get the Latest Neurology News! August 15, 2012
- Personal Profile: Wendy Lowe, Nurse: Trauma Surgical Intensive Care Unit September 6, 2012
- Spin / Yoga for a Cure: Thursday September 27th Hot Ryde Roslyn, New York September 19, 2012
- Camp CMT: Great Opportunity for Children with CMT! September 24, 2012
- Featured
- Bracing for Helios® January 28, 2013
- TEAM CMT & CHRIS WODKE February 1, 2013
- One Woman’s Success with Surgery April 1, 2013
- Grace's Courage Crusade
- Grace’s Courage Crusade Brunch 2011 October 30, 2011
- Grace’s Courage Crusade Brunch 2012 October 31, 2012
- Sunday, November 3, 2013: Grace’s Courage Crusade Brunch February 13, 2013
- Marathons
- Running Marathons to Raise Awareness of Charcot-Marie-Tooth November 17, 2011
- Saturday, Nov 10, 2012: Richmond Half-Marathon Fundraiser March 13, 2012
- April 16, 2012: Team CMT Leader to Run Boston Marathon March 31, 2012
- Team CMT leader finishes second at Boston Marathon April 23, 2012
- Joe Torello, Music Man October 4, 2012
- Media
- New York Times features Voice of CMT September 3, 2011
- Charcot-Marie-Tooth Awareness: In the News! December 15, 2011
- More Magazine features story on Charcot-Marie-Tooth January 27, 2012
- Film Release: Bernadette! June 11, 2012
- Get the Latest Neurology News! August 15, 2012
- BERNADETTE SCARDUZIO: The Face of Charcot-Marie-Tooth Disease April 1, 2013
- Meet your Team CMT Manager
- Meet your Team CMT Manager April 1, 2013
- Personal Profiles
- NYC bike ride to highlight rare neurological disorder February 25, 2013
- One Woman’s Success with Surgery April 1, 2013
- Research
- CMT Research Update: HNF-Funded Projects December 6, 2011
- HNF to fund promising research on Charcot-Marie-Tooth December 18, 2011
- Get the Latest Neurology News! August 15, 2012
- Dr. Robert Baloh Answers Our Questions About iPS Cell Research January 9, 2013
- “Fighter Mom’s” Join Forces February 27, 2013
- Assay Depot And Rare Genomics Institute Award Prizes To Study 26 Rare Diseases April 1, 2013
- HNF-WVU-NIOSH Study update: May 9, 2013
- Special Events
- September is CMT Awareness Month September 14, 2011
- Podiatry Meeting in NYC September 28, 2011
- December 1-3, 2011 – Champions for Charity November 20, 2011
- Thursday, November 29th – Saturday December, 1st Shop Til You Drop Americana Manhasset, New York February 24, 2012
- Fundraiser for CMT Awareness a Huge Success June 15, 2012
- January 31, 2014 – Bridge/Brunch Fundraiser February 10, 2013
- Spin NJ
- Spotlight on the Mattheiss Family February 24, 2012
- First Spin-a-thon of 2012 a Smashing Success! April 1, 2012
- Spin-a-thon
- Spin-a-thon 2011 October 24, 2011
- Spotlight on the Mattheiss Family February 24, 2012
- First Spin-a-thon of 2012 a Smashing Success! April 1, 2012
- July 28, 2012: Hamptons Spin-a-thon & Party! June 1, 2012
- Personal Profile: Nick Zappola July 12, 2012
- Hampton’s Spin 2012: Booming Success August 13, 2012
- Spin / Yoga for a Cure: Thursday September 27th Hot Ryde Roslyn, New York September 19, 2012
- Team CMT
- Saturday, Nov 10, 2012: Richmond Half-Marathon Fundraiser March 13, 2012
- Personal Stories: Barb Vonada, triathlete, veteran and more! March 26, 2012
- Personal Profile: Di Billick–Actress, Model, Inspiration March 26, 2012
- April 16, 2012: Team CMT Leader to Run Boston Marathon March 31, 2012
- Coaching Athletes with Charcot-Marie-Tooth April 17, 2012
- Di Billick Runs 10k for Team CMT April 20, 2012
- Team CMT leader finishes second at Boston Marathon April 23, 2012
- A Great Ride at Bike New York May 13, 2012
- Personal Profile: Alyson O’Connor, Fitness Instructor & Volunteer Fire Fighter July 12, 2012
- Team CMT: Monthly Family 5K Fun Run July 12, 2012
- Joe Torello, Music Man October 4, 2012
- Running for Three Generations with CMT December 3, 2012
- HNF Charity Partner: TD Five Boro Bike Tour May 5, 2013 January 7, 2013
- TEAM CMT & CHRIS WODKE February 1, 2013
- School Outreach Program and Team CMT Kids February 21, 2013
- Meet your Team CMT Manager April 1, 2013
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