On December 1, 2016 Rick started his  RV journey across the United States to spread awareness for Charcot-Marie-Tooth (CMT). One would think this is an easy feat but having CMT has its challenges living in a home nevertheless an RV!

Rick has not mapped out a certain plan, but will be guided by his desire to meet new people and follow where the road takes him.

HNF is excited that Rick will be documenting this amazing journey and update the CMT Community weekly about his journey.

Please check back regularly to follow Rick on this adventure!

Learn more about Rick in his Q&A!

bumper-sticker-banner-rick

With every donation receive a bumper sticker to help speed up awareness!

Rick and Bernadette gear up for Rick's journey!

Rick and Bernadette gear up for Rick’s journey

May 21, 2017

Since my last blog post, I've been dealing with some personal/family issues, which isn't very easy being so far away and with poor internet and phone connection. I'm nearing completion of re-dying the upholstery in my motorhome from the awful gray to cream. A...

May 2, 2017

I have completed two weeks of boondocking (living off the grid) in the desert area of the Coconino National Forest in Arizona’s Red Rock Country. The new solar electrical system performed as I hoped. I had to scrimp on water usage, but there was plenty of propane to...

Sunday, 9 April 2017

Sunday, 9 April 2017 I’m settling in for a stint in the beautiful and majestic Sedona area of Arizona. I’m staying at a campsite in Oak Creek, where the bedroom window of my RV faces the water and the cactus covered hills. As with many folks, one of the draws to this...

RV Tips and Advice: Rick Cole the CMTrv’er

I am currently at Rusty’s RV Ranch (RV park), which is situated in the desert and surrounded by the Chiricahua Mountains, and conveniently located close to the Chiricahua National Forest. It’s a wonderful place to kick off my time out west, which I have been looking...

February 2, Day 82

February 2, Day 82 I am about halfway across country and almost 3 months into my solo journey. It’s taken me much longer than anticipated because of my physical issues and some unforeseen circumstances. With the only thing on the horizon being an RV rally in Tucson...

Day 28: Bradenton, FL

Day 34: The time to move on from Bradenton, FL, is drawing near. It’s been a difficult past week. My sister was hospitalized (not CMT-related) and I’ve experienced several extremely difficult days getting around. Nevertheless, I’ve managed to get a fair amount of...

Day 28: Bradenton, Florida

Day 28: Bradenton, Florida   I'm visiting with my sister and nephew, who both have CMT, and my niece who does not. My sister requires a scooter to get around and help from my nephew while he’s still able to. I try to stay present-minded, but sometimes I cannot help...

Day 10: Little River Campground, Fort Payne, AL

Day 10: Little River Campground, Fort Payne, AL A much needed several day respite in Alabama. I've been traveling almost every day, but for only a few hours each day. I can't tolerate more than that. The cumulative effect of my traveling has been much more than I ever...

Checking in from Chattanooga, TN

It's taken me six days with several hours of travel per day to get to Chattanooga, TN for a visit with friends. My new forearm crutches have been really great. I only had one incident where I fell into a display at Cracker Barrel. My new friend Christian, a hitchhiker...

Wednesday, November 29, 2016

Wednesday, November 29, 2016 One day from start of my maiden RV journey. If the lead up is any indication of how things will go once I leave, it’s sure to be a fantastic journey! There has been an incredible amount of things to do in preparation for my departure:...

Share This