Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
HNF
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As Good as it Gets? A Young Man’s Struggle to Find Compassionate Treatment in the Face of Severe CMT
Issue date: 
02/02/2009

Recently, while perusing the CMTUS Forums on Yahoo, HNF came across a flurry of email posts from a 33-year-old New Jersey man named Andy Garval, with a severe case of Charcot Marie Tooth disease, who bemoaned his doctor’s lack of care and wondered, “Is this as good as it gets?” He wrote about his frustrations in terms of getting responsive medical treatment and his feeling of being “at the end of his rope.” We decided to talk to him directly about his experiences, as we think many of you will relate to his frustrations and concerns.

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Author Name: 
Christy Casamassima
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Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy