Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
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New Beginnings - Julie Newmar on the Helios Brace
Issue date: 
01/20/2009

The Helios braces made for me in Vegas by Mitch Warner (I have CMT) gave me a whopping blast of confidence, they gave me a saucy superior, star-size eagerness. I felt a raw clarity and confidence of thought, a more dynamic presence. I was standing in the small cottage kitchen at Leon Williams’ New Years Day birthday party. Unlike last night, I could stand for hours; up-straight, tall. “Tall and growing” I said. I was spectacular; beautifully dressed, thoughtfully put together. I could even drive a car with my new braces on; heel, not toe, safely on the gas pedal. I have a new life here. I am not weak and stumbling behind my fear. This fear must be conquered. I’m currently channeling FDR. What a great way to begin the New Year. The Hereditary Neuropathy Foundation has partnered with the University of Nevada, Las Vegas, and Ortho Rehab Designs of Las Vegas to undertake a study of the effectiveness of the Helios Brace for persons with CMT. You can find out more information about the study, including how to become a participant, here

Author Name: 
Julie Newmar
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Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy