With frequent new discoveries that have the potential to advance our mission to find a cure for Charcot-Marie-Tooth, it is critical to stay informed and involved. In addition, staying connected to our community increases our strength and raises our collective voice!

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Top 10 Ways to Spread CMT Awareness

“You have what?” This is a common response when you tell someone you have Charcot-Marie-Tooth disease. We don’t just have CMT: we have a disease name awareness problem! How can we, together as a community of patients, caregivers, and healthcare professionals, work to...

HNPP Study Available for HNF Members

Ayse Deniz Elmali, MD is a neurologist and a researcher. Her never-ending intellectual curiosity has led her first to Istanbul University, Cerrahpasa Medical Faculty and then to residency at the same university. Being in love with the complexity of the human nervous...

H.E.L.P. Card Party CMT2A Fundraiser

On Friday January 29, 2016 H.E.L.P. Fund supporters came together for the 7th annual H.E.L.P. Card Party at Broken Sound Country Club, Boca Raton. Event hosts Iris and Nat Adler started the H.E.L.P. Fund (Help Elliot Live Proud) back in 2007 to benefit CMT2A, in honor...

Accepting Myself for Who I Am

Growing up, I always knew I was different than my friends. I couldn’t run fast, tripped often (the scars on my knees are a reminder), was lousy at any sports-related activity, and was generally weak and uncoordinated. My friends accepted me as I was and didn’t really...

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