With frequent new discoveries that have the potential to advance our mission to find a cure for Charcot-Marie-Tooth, it is critical to stay informed and involved. In addition, staying connected to our community increases our strength and raises our collective voice!

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Calling Everyone With CMT/IN

CMT/Inherited Neuropathies Patient-Reported Survey Needs You to Advance Therapies HNF has launched a new Patient-Reported Research Study to advance therapies for CMT and inherited neuropathies (IN) in an effort to collect comprehensive data for a better understanding...

New Collaboration with the University of North Carolina at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy

Gene therapy represents an exciting new frontier being explored for treating a number of diseases. Currently, gene therapy is being used in a clinical trial to treat one of the rare forms of inherited neuropathy (IN), giant axonal neuropathy (GAN). Because of the...

Disease Awareness Problem

Charcot-Marie-Tooth Disease Awareness Problem from Hereditary Neuropathy Foundation on Vimeo. If you walked up to a group of people in your town, your city, your school, or your neighborhood…and asked them if they ever heard about Multiple Sclerosis, the majority...

Top 10 Ways to Spread CMT Awareness

“You have what?” This is a common response when you tell someone you have Charcot-Marie-Tooth disease. We don’t just have CMT: we have a disease name awareness problem! How can we, together as a community of patients, caregivers, and healthcare professionals, work to...

HNPP Study Available for HNF Members

Ayse Deniz Elmali, MD is a neurologist and a researcher. Her never-ending intellectual curiosity has led her first to Istanbul University, Cerrahpasa Medical Faculty and then to residency at the same university. Being in love with the complexity of the human nervous...

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