Susan Kinney, an artist, has launched an art fundraiser to support CMT.  Her inspirational story of personal victory is one you won't want to miss!

HNF has teamed up with Grace's Courage Crusade and the CMT Foundation to publish an important children's book, Arlene on the Scene.  Arlene On the Scene tells the fictional story of a nine year-old girl with CMT who sets out to prove to her classmates, her family, and herself that she is more than her CMT. 
 

HNF, in conjunction with Carol Liu and Marybeth Caldarone of Grace's Courage Crusade, are planning to produce Arlene on the Scene, a children's book featuring a young girl with CMT named Arlene.  Readers will be able to follow Arlene as she learns about diversity, acceptance, and the importance of being yourself.  Read more for a short synopsis and excerpt from the book. If you are interested in supporting the cost of producing the book, please click here. 

HNF Board Member Iris Adler is dedicated to raising money to support HNF's TRIAD Program and our CMT2 research project to find a cure for CMT2.  CMT2 hits close to home for Iris - her 9 year old grandson, Elliot, has the disease.  Read the letter she and her husband, Nat, sent to their friends and family this year.  In 2008, her annual appeal letter raised over $130,000.  This year, her letter has raised over $70,000 and is still going strong!

HNF has joined America's Giving Challenge on Facebook, which gives us a chance to win up to $50,000.   From now until November 6th, non-profit organization are asking their members to donate and the organization with the most individual donations will win $50,000.  Even a donation of $10 will help us reach our goal, so please donate today!

After two hugely successful Spin for the Cure spinathons, HNF is going to hold a third spinathon on August 15, 2009 at the (B)East RealRyder Fitness Studio in Amagansett, NY. 

Allison Moore, founder and President of HNF, tells why her four hour spin is a triumph of body and spirit.

The Hereditary Neuropathy Foundation announced today that it was launching a multi-institutional, collaborative effort to find a cure for Charcot-Marie-Tooth disease.