Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

If Someone told you that they had Charcot Marie Tooth, would you recommend a dentist?
Charcot Marie Tooth (CMT) is not a dental problem. It' s the number 1 inherited neuromuscular disease in America.
The Hereditary Neuropathy Foundation is committed to raising funds to support medical research and clinicla studies of Charcot marie Tooth. To learn more about CMT and our efforts, visit our website at www.hnf-cure.org or call us at (917) 648-6971.

About Us:
The Hereditary Neuropathy Foundation is a non-profit charitable organization committed to improving the lives of people with Charcot Marie Tooth disease. We strive to increase public awareness of CMT, sponsor much needed projects, offer support and information on this inherited disorder.

What We Do:
We are currently pursuing several activities in order to raise funds to create and support new CMT related research projects. The research projects that we will be spearheading focus on methods to improve one's quality of life with an emphasis on self-management.

Several research ideas are in the planning stage; but based upon our most recent survey results, understanding what it is like to live with CMT and engaging in exercise to improve mobility, are reported as being top priorities of interest.

Telling YOUR Story is a research project already underwayand be assured that confidentiality is respected. Visit our website to learn more from our qualified researchers, Elizabeth Barrett, RN, PhD, FAAN and Thomas Cox, RN, MS, MSW.
www.hnf-cure.org.

Exercise is an activity that can be undertaken and maintained by oneself. When CMT is involved it is difficult to know how much is too much. The challenge is to identify those exercises that are most beneficial. In a concentrated research project to be administered by renowned experts, we want to answer these questions once and for all. Out goal is to formalize an exercise programs that is specific and beneficial for individuals with CMT.

If our work is of interest to you, please help us in our fundraising efforts by either purchasing or participating in our magazine drive with QSP, a year-round fund-raising program. With over 700 magazines to choose from, readers save r75% off the newsstand price and 40% of all saled will come to support the research fund-raising of HNF. QSP is thelargest fund-raising company in the US and is a subsidiary of Reader's Digest. Help us help ourselves and others with CMT.

To discuss your ideas, learn more about us, and join in our activities, please contact:
Allison T. Moore, Executive Director.
allsion@hnf-cure.org
(212) 722-8396