Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
HNF

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An Upcoming Documentary about Living with CMT

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Arlene has Plans... Big Plans!

Read all about Arlene in  Arlene on the Scene... available in September

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Hereditary Neuropathy Foundation, Inc.
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PRODUCTS/SERV REVIEWS

Does Reiki Offer Real Benefits or is it Just Hot Air? You Be the Judge

Issue date:  Mon, 03/19/2007 Author Name:  Christy Casamassima Back in 2003, The University of Wisconsin set out to learn whether or not Reiki, a Japanese method of imparting “healing energy” to patients, offers real benefits or is just bunk. While the results of that survey are not yet avai...


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The Feldenkrais Method Offers a Unique Treatment for Those with CMT

Issue date:  Tue, 02/20/2007 Author Name:  Mary London The Feldenkrais Method was developed by Dr. Moshe Feldenkrais and is “a form of somatic education that uses gentle movement and directed attention to improve movement and enhance human functioning,” (from www.feldenkrais.com).&nbs......


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Comfy, Silcone Braces for People with Drop Foot

Issue date:  Tue, 02/13/2007 Author Name:  Christy Casamassima At HNF, we love to offer suggestions and information to help improve your lives; that’s why when we find a product we like, we pass on the information to you. Many of you know how much we love the Helios line of braces, but we also wa...


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New Plastic Version of Helios Orthosis Available—A Breakthrough at a Fraction of the Original Price

Issue date:  Mon, 01/15/2007 Author Name:  Christy Casamassima This month, HNF talks to Mitch Warner, the founder of Ortho Rehab Designs in Las Vegas, a company that specializes in revolutionary bracing systems that help people move around with greater ease, balance and comfort. In the past, we’v...


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Athena Diagnostics - Everything You Want to Know NOW!

Issue date:  Sat, 12/31/2005 Author Name:  Gretchen Glick Due to recent confusion in the CMT community about the pricing of the CMT DNA testing at $9,000, we offer an in-depth look at the test, correct prices, and an easy-to-understand procedure guide for what happens to your blood sample after it arr...


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Help LICK CMT

Issue date:  Fri, 09/30/2005 Author Name:  Susan Wheeler, Executive Director Help “Lick” CMT Announcing the First-Ever USA - CMT Postage Stamp! In partnership with CMTUS, we’re thrilled to inform you about the creation of the First-Ever USA - CMT Postage Stamp! All sales proceeds... ...


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Hot Tub with Care

Issue date:  Tue, 05/31/2005 Author Name:  Susan Wheeler, Director A bacterium, called Mycobacterium avium, can get into your lungs and cause infection from the bubbling hot water and mist that hot tubs create. It is actually called “hot tub lung” (HTL). In may take a few months to become re...


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Innovative Wheelchair Gets FDA approval

Issue date:  Wed, 05/12/2004 Author Name:  Susan Wheeler, Director, CMTWorld.org iBOT™ Mobility System – Unlike any traditional wheelchair the iBOT™ Mobility System features an electronic balance system that is custom programmed and calibrated, allowing the device to constantly realign ...


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CMT and Orthotics: A New Approach

Issue date:  Wed, 12/31/2003 Author Name:  Eric Askew, MBAPO Greetings, I am a consultant orthotist from Dorset Orthopaedic Ltd in the United Kingdom. During the past year I have had the pleasure of working with over one hundred people with CMT. Orthotics is changing and I thought it might be helpful ...


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Warm Feet ...Warm Heart

Issue date:  Wed, 12/31/2003 Author Name:  Denise De La Franier Like many people with CMT, Patricia Kotack displays a number of common symptoms, with chronic freezing feet being one of the more frustrating ones. Although Patricia’s eldest daughter Melissa and husband Allan don’t have CMT the...


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