Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
HNF

Bernadette

An Upcoming Documentary about Living with CMT

View Trailer !

 

 

 

 

Arlene has Plans... Big Plans!

Read all about Arlene in  Arlene on the Scene... available in September

Pre-Order your copy now !

 

 

 

 

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Hereditary Neuropathy Foundation, Inc.
1751 2nd Avenue, Suite 103, NY NY 10128
NY Tel: 212-722-8396
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PRODUCTS/SERV REVIEWS

Arlene on the Scene will arrive in September!

Issue date:  Tue, 06/15/2010 Author Name:  Carolyn Spector Arlene on the Scene will arrive in September!  Arlene has plans. Big Plans.   She's going to become the youngest student government officer in Greenwood Elementary history. She'll be the biggest th...


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Vitamin B6: Too Much of a Good Thing!

Issue date:  Wed, 03/11/2009 Author Name:  Christy Casamassima The thing about vitamins is that despite all the ads touting their benefits, not all of them are good for us; indeed, in large doses, some can actually be quite toxic to our systems. Such is the case with megadoses of the vitamin B6. In a...


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Antioxidant Products Don’t Live Up to The Hype

Issue date:  Tue, 01/27/2009 Author Name:  Christy Casamassima Full text available to Members Only. Please log in at the left side of the page to read the article. ...


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New Beginnings - Julie Newmar on the Helios Brace

Issue date:  Tue, 01/20/2009 Author Name:  Julie Newmar The Helios braces made for me in Vegas by Mitch Warner (I have CMT) gave me a whopping blast of confidence, they gave me a saucy superior, star-size eagerness. ...


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HNF Underwrites Important New Study on the Benefits of the Helios Bracing System

Issue date:  Mon, 10/27/2008 Author Name:  Christy Casamassima Recently, HNF teamed up with a group of experts to create the Helios Brace Performance and Production Study. The premise of the study is that the Helios, a revolutionary ankle-foot orthotic bracing system that can store and release energy,...


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What is IMS and Can it Help CMT Patients Reduce Pain?

Issue date:  Tue, 09/30/2008 Author Name:  Christy Casamassima There’s been a lot of chatter on Yahoo’s popular CMTUS chat group lately about a pain-relief technique called “Intramuscular Stimulation” or IMS, developed in the ‘70s by Dr. C.C. Gunn, a pioneer in the treatment of pain and pres...


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Ayurveda Alert! Toxic Metals Found in Herbal Medicine Products Sold Online

Issue date:  Tue, 09/23/2008 Author Name:  Christy Casamassima In the past, we have touted the benefits of Ayurvedic medicine, a form of medicine that originated in India more than 2,000 years ago and relies heavily on herbal products. In India, an estimated 80 percent of the population practices Ayur...


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A Professional Trumpet Player Discovers a Device to Keep His Career Jazzy

Issue date:  Thu, 08/28/2008 Author Name:  Christy Casamassima Recently, we heard from Lolly Bienenfeld, of Brooklyn, New York, who wrote in to tell us about a product called Silver Ring Sprints that helped her husband, John, a professional jazz trumpet player, overcome debilitating CMT symptoms that ...


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The IShoe, a New Device, Predicts—and Prevents—Falls

Issue date:  Tue, 08/19/2008 Author Name:  Christy Casamassima One of the problems with CMT is that its symptoms, like frequent falls, can be unpredictable. Wouldn’t it be great if we could predict—and prevent—a bad fall before it happened? A new device, created by an MIT graduate stude...


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New Pen Makes Handwriting Comfortable Again for CMT Sufferers

Issue date:  Tue, 06/17/2008 Author Name:  Christy Casamassima Recently, on our forums, Juve Fan, an HNF member from United Arab Emirates wrote, seeking help for his struggle with his handwriting due to neuropathy-related weakness. He said, “My handwriting has become very slow. My thumb muscles a...


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