Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
HNF
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Hereditary Neuropathy Foundation, Inc.
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PRODUCT & SERVICE REVIEWS

Vitamin B6: Too Much of a Good Thing!
Issue date: 
03/11/2009
Author Name: 
Christy Casamassima

The thing about vitamins is that despite all the ads touting their benefits, not all of them are good for us; indeed, in large doses, some can actually be quite toxic to our systems. Such is the case with megadoses of the vitamin B6. In a December report from the Department of Neurology at the University of Ulm in Germany, researchers evaluated a patient with severe sensorimotor neuropathy after intake of highest dosages of vitamin B6.

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Antioxidant Products Don’t Live Up to The Hype
Issue date: 
01/27/2009
Author Name: 
Christy Casamassima

Despite all the articles touting the benefits of substances with “anti-aging” or antioxidant properties, a research study out of England now says that these so-called miracle products—foods, vitamin supplements and beauty items that claim to prevent aging by eliminating “free radicals”—are a lot of bunk.

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New Beginnings - Julie Newmar on the Helios Brace
Issue date: 
01/20/2009
Author Name: 
Julie Newmar

The Helios braces made for me in Vegas by Mitch Warner (I have CMT) gave me a whopping blast of confidence, they gave me a saucy superior, star-size eagerness. What a great way to begin the New Year. 


HNF Underwrites Important New Study on the Benefits of the Helios Bracing System
Issue date: 
10/27/2008
Author Name: 
Christy Casamassima

Recently, HNF teamed up with a group of experts to create the Helios Brace Performance and Production Study. The premise of the study is that the Helios, a revolutionary ankle-foot orthotic bracing system that can store and release energy, can help to compensate for neuropathic impairment in the lower extremities of CMT patients and improve their gait. The main goal is to improve mobility for people with CMT.

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What is IMS and Can it Help CMT Patients Reduce Pain?
Issue date: 
09/30/2008
Author Name: 
Christy Casamassima

There’s been a lot of chatter on Yahoo’s popular CMTUS chat group lately about a pain-relief technique called “Intramuscular Stimulation” or IMS, developed in the ‘70s by Dr. C.C. Gunn, a pioneer in the treatment of pain and president of the Institute for the Study and Treatment of Pain in Vancouver, Canada.  In Gunn’s words, Gunn IMS is a “safe and effective technique” using needles for treating 'the shortened muscle syndrome.'  Since the discovery, doctors from the US to Europe have been applying the therapy to treat everything from low-back and knee pain to myofacial or soft-tissue pain. For CMT patients, the treatment offers relief for a host of painful symptoms.

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Ayurveda Alert! Toxic Metals Found in Herbal Medicine Products Sold Online
Issue date: 
09/23/2008
Author Name: 
Christy Casamassima

In the past, we have touted the benefits of Ayurvedic medicine, a form of medicine that originated in India more than 2,000 years ago and relies heavily on herbal products. In India, an estimated 80 percent of the population practices Ayurveda. In the United States, Ayurvedic remedies have increased in popularity and are available from South Asian markets, health food stores and on the Internet.

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A Professional Trumpet Player Discovers a Device to Keep His Career Jazzy
Issue date: 
08/28/2008
Author Name: 
Christy Casamassima

Recently, we heard from Lolly Bienenfeld, of Brooklyn, New York, who wrote in to tell us about a product called Silver Ring Sprints that helped her husband, John, a professional jazz trumpet player, overcome debilitating CMT symptoms that threatened his career. Lolly told us, &#14...

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The IShoe, a New Device, Predicts—and Prevents—Falls
Issue date: 
08/19/2008
Author Name: 
Christy Casamassima

One of the problems with CMT is that its symptoms, like frequent falls, can be unpredictable. Wouldn’t it be great if we could predict—and prevent—a bad fall before it happened? A new device, created by an MIT graduate student called the iShoe insole could help doct...

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New Pen Makes Handwriting Comfortable Again for CMT Sufferers
Issue date: 
06/17/2008
Author Name: 
Christy Casamassima

Recently, on our forums, Juve Fan, an HNF member from United Arab Emirates wrote, seeking help for his struggle with his handwriting due to neuropathy-related weakness. He said, “My handwriting has become very slow. My thumb muscles are weak and I am having difficulty writing...

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Yoga May Prevent Falls in the Elderly, among Other Benefits
Issue date: 
04/21/2008
Author Name: 
Christy Casamassima

Researchers at Temple University's Gait Study Center have found that Iyeynger yoga—a basic yoga regimen that stresses proper ways to breathe, stand and pose—had helped improve stability and balance in women over age 65, and, thus, may also help to prevent falls. We at HN...

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Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy