Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
HNF

Bernadette

An Upcoming Documentary about Living with CMT

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Arlene has Plans... Big Plans!

Read all about Arlene in  Arlene on the Scene... available in September

Pre-Order your copy now !

 

 

 

 

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Hereditary Neuropathy Foundation, Inc.
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PERSONAL PROFILES

A Long Island-based Chiropractor Offers Relief to Patients with Neurodegenerative Diseases, Including CMT

Issue date:  Wed, 11/14/2007 Author Name:  Christy Casamassima Recently, we spoke with Steven V. Macagnone, DC, LCP, a doctor who practices at Center Island Chiropractic, a full-service chiropractic and wellness center in Jericho, New York, treating everything from headaches and neck pain to stress ma...


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Sherri Backstrom: Founder of Disability-Friendly Yacht Charter Service

Issue date:  Tue, 10/02/2007 Author Name:  Christy Casamassima Sherri Backstrom, of Bellingham, WA, was a single mother of three children working in the boating industry when she met her partner, Don, an avid boater. Today, adding a stepchild and a grandchild into the mix, Sherri and Don plan to marry...


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HNF Medical Advisory Board Profile: Dr. Sharon DeMuth

Issue date:  Wed, 09/05/2007 Author Name:  Christy Casamassima Dr. Sharon DeMuth is assistant Professor of Clinical Physical Therapy in the Department of Biokinesiology and ... Full text available to Members Only. Please log in at the left side of the page to read the article. ...


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HNF Medical Advisory Board Profile: Dr. Robert Chetlin

Issue date:  Mon, 08/20/2007 Author Name:  Christy Casamassima Robert D. Chetlin, PhD, CSCS, HFI, is an Associate Professor at the West Virginia University School of Medicine, in Morgantown, West Virginia, where he has a dual appointment in the Departments of Human Performance and Neurology.  In ...


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HNF Medical Advisory Board Profile: Dr. David E. Pleasure

Issue date:  Mon, 08/06/2007 Author Name:  Christy Casamassima Recently, we caught up with Dr. David E. Pleasure, a Professor of Neurology and Pediatrics at UC Davis and Director of Research at The Shriners Hospitals for Children Northern California who lives in California with... Full text available ...


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HNF Medical Advisory Board Bio: Daniel L. Farkas, PhD

Issue date:  Tue, 07/31/2007 Author Name:  Cedars-Sinai Medical Center Daniel L. Farkas was trained in Theoretical Physics in Romania, and holds a Ph.D. in Biophysics and Biochemistry from the Weizmann Institute in Israel, where he received a number of honors (Yashinsky Outstanding Graduate Student Pr...


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HNF Medical Advisory Board Profile: Jay S. Tung, Ph.D

Issue date:  Wed, 07/25/2007 Author Name:  Christy Casamassima Jay S. Tung, Ph.D., is the Vice President of Drug Discovery at the Myelin Repair Foundation (MRF) in Saratoga, CA. He lives in Belmont, CA, just outside of San Francisco, with his wife Ellen and two kids, Jason and Megan. We caught up with...


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CMT: A Disease with Many Faces, Part VII: John Kuwik

Issue date:  Sun, 06/10/2007 Author Name:  Christy Casamassima John Kuwik, 61, is a licensed Professional Engineer, and the co-founder and president of a simulation software firm with four locations. Married for 38 years with one grown daughter, Kuwik lives in Hudson, Ohio, with his family. An athlete...


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CMT: A Disease with Many Faces, Part VI: Jill Starkey

Issue date:  Mon, 05/28/2007 Author Name:  Christy Casamassima Since 2000, Jill Marlene Starkey (Schuster), a self-employed artist and teacher and divorced mother of two, has lived in Beulah, Colorado. Below, she talks candidly about her family history of CMT and how her financial limitations have imp...


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CMT: A Disease with Many Faces, Part V: Diane Covington

Issue date:  Tue, 05/01/2007 Author Name:  Christy Casamassima Diane Covington, 51, of Broomfield, CO, is a mother of three grown children who recently split up with her husband. She works part-time for a wholesale tile and stone importer, helping clients choose the right materials in the design of th...


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