Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
HNF

Bernadette

An Upcoming Documentary about Living with CMT

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Arlene has Plans... Big Plans!

Read all about Arlene in  Arlene on the Scene... available in September

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Hereditary Neuropathy Foundation, Inc.
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PERSONAL PROFILES

Linda Here! - A CMT Love Story

Issue date:  Wed, 02/11/2009 Author Name:  Linda Crabtree There’s nothing like a love story to warm up a cold February day and here’s one that should put a smile on your face and a glow in your heart. Full text available to Members Only. Please log in at the left side of the page to read the arti...


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As Good as it Gets? A Young Man’s Struggle to Find Compassionate Treatment in the Face of Severe CMT

Issue date:  Mon, 02/02/2009 Author Name:  Christy Casamassima Recently, while perusing the CMTUS Forums on Yahoo, HNF came across a flurry of email post Full text available to Members Only. Please log in at the left side of the page to read the article. ...


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Actress Julie Newmar Puts a Positive Spin on Living with CMT

Issue date:  Sun, 11/23/2008 Author Name:  Christy Casamassima In July 2008, the N. Y. ...


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We Are Not Our CMT

Issue date:  Wed, 09/17/2008 Author Name:  Linda Crabtree Among the many things that remain with me after having run CMT International for 18 yea Full text available to Members Only. Please log in at the left side of the page to read the article. ...


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Meet Our Newest Columnist, Linda Crabtree!

Issue date:  Tue, 08/26/2008 Author Name:  Linda Crabtree Some of you might remember our newest columnist, Linda Crabtree. Linda founded CMT International in 1984 and for 18 years she and her husband, Ron Book, ran the organization out of their home offices in St. Catharines, Ontario, Canada - a stone...


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HNF Member Melinda Lang: Living with CMT

Issue date:  Tue, 07/29/2008 Author Name:  Melinda Lang This week we received a story from Melinda Lang of Cohoes, NY.  Melinda wrote about the process of getting diagnosed with CMT and how her life has changed now that she is living with the disease. Full text available to Members Only. Please log ...


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Spinning for the Cure: Terri Eickel, HNF Executive Director

Issue date:  Wed, 06/11/2008 Author Name:  Christy Casamassima This week, we spoke with Terri Eickel, HNF director, about her tireless efforts on behalf of people who have CMT and her upcoming participation in the HNF Spin-a-Thon, which is raising money for research aimed at finding a cure for this de...


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Spinning for the Cure: Mary London, HNF Membership Director

Issue date:  Mon, 06/09/2008 Author Name:  Christy Casamassima Recently, we spoke with Mary London, Office Manager/Membership Director for HNF. Two years ago, London joined HNF in an administrative capacity and, now, she quips, “I have my hands in almost every part of HNF as an organization.”...


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Andrew Collins, a Florida Teen Living with CMT, Tells the Story of how the Disease Impacts His Life

Issue date:  Tue, 05/27/2008 Author Name:  Andrew Collins Recently, we spoke with teenager Andrew Collins, a 14-year-old living with CMT in Longwood, Florida, with his parents and younger brother, Matt, who is 11 and ... Full text available to Members Only. Please log in at the left side of the page ...


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HNF Member Jeanette Bauknecht to "Spin for the Cure" in Michigan!

Issue date:  Mon, 05/19/2008 Author Name:  Christy Casamassima Jeanette Marie Bauknecht is a 38-year-old mother of four who lives in Grand Marais, MI, a tiny tourist town of about 300 on the shores of Lake Superior, located “110 miles from the nearest Wal-Mart,” quips Bauknecht.  Marrie...


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