Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
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An Upcoming Documentary about Living with CMT

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Hereditary Neuropathy Foundation, Inc.
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Start the New Year off on the Right Foot

Issue date:  Sat, 12/31/2005 Author Name:  Christy Casamassima Start the New Year off on the Right Foot— An Interview with Glenn Pfeffer, MD Director, Foot and Ankle Center at Cedars-Sinai Medical Center in LA Q: One of the most prevalent visible signs of CMT is foot drop. How does this occur and...


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Another Chicken and Egg Situation

Issue date:  Sun, 07/31/2005 Author Name:  Susan Wheeler, Executive Director Patients with untreated Obstructive Sleep Apnea or OSA have decreased oxygen saturation levels, which may worsen existing neurological or neuromuscular symptoms. In turn, existing neuromuscular and neurological condition...


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HNPP & CMT

Issue date:  Sun, 07/31/2005 Author Name:  Maureen Horton, R.N. How is HNPP similar and different from CMT? The HNPP experience: Although people who carry the HNPP gene may have no symptoms initially, as time goes by and as people are evaluated more carefully, it has become clear that mi... Full te...


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Migraine Headaches

Issue date:  Sun, 07/31/2005 Author Name:  Susan Wheeler, Executive Director Several studies suggest Migraine Headaches are in fact a hereditary disease; and of course having one disease does not omit the possibility of having others. Women are 3 times more likely to experience migraines than men sugg...


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What is HNPP?

Issue date:  Thu, 06/30/2005 Author Name:  HNPP Org Hereditary Neuropathy with liability to Pressure Palsies or HNPP is a slowly progressive, hereditary neuromuscular disorder which makes an individual very susceptible to nerve injury from pressure, stretch or repetitive use. When injured, the nerves ...


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Good News for CMT-2A Patients

Issue date:  Thu, 02/24/2005 Author Name:  JD Griffith, M.S., CMT Foundation This April, researchers discovered the gene responsible for Charcot-Marie-Tooth Disease-2A (CMT-2A), the second most common form of CMT. In the April issue of Nature Genetics, an International group led by Stephan Züchne...


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The Nuts and Bolts of CMTWorld

Issue date:  Wed, 08/18/2004 Author Name:  Susan Wheeler, Director Let me offer my sincere thanks to those who have emailed inquiring about my health. It’s true over the past two weeks I have taken a break from posting articles. This was not due to health challenges and I appreciate the number of...


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Osteoporosis: No free pass for CMT

Issue date:  Wed, 07/28/2004 Author Name:  Susan Wheeler CMTWold Director Having CMT unfortunately does not give us a free pass from other health conditions that are related to the natural aging process. In fact the exact opposite can be true as physical activity is linked to being a preventive stabil...


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Overlapping Symptoms

Issue date:  Tue, 07/13/2004 Author Name:  Susan Wheeler, CMTWorld Director As research efforts move forward, we are routinely learning about overlapping health factors between various conditions. Suggesting there are some common elements within cause-and-effect scenarios that had not previously been ...


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Ouch! Ingrown Toenails

Issue date:  Mon, 06/07/2004 Author Name:  Susan Wheeler, Director CMTWorld Ingrown toenails are not an uncommon problem for people with CMT due to the pressure placed on the front and side of the foot while walking. When hand dexterity difficulties are an issue this further exacerbates the problem as...


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