Bernadette
An Upcoming Documentary about Living with CMT
Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy
THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
Arlene has Plans... Big Plans!
Read all about Arlene in Arlene on the Scene... available in September
MEMBER LOGIN
Hereditary Neuropathy Foundation, Inc.
1751 2nd Avenue, Suite 103, NY NY 10128
NY Tel: 212-722-8396
Toll Free: 877-463-1287
info@hnf-cure.org
1751 2nd Avenue, Suite 103, NY NY 10128
NY Tel: 212-722-8396
Toll Free: 877-463-1287
info@hnf-cure.org
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CMT TREATMENT ARTICLES
Yoga: Breathe In, Breathe Out
Issue date:
Wed, 03/03/2004
Author Name:
Denise De La Franier
Full text available to Members Only. Please log in at the left side of the page to read the article.
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The Use of Glucosamine for CMT Joint Pain
Issue date:
Tue, 03/02/2004
Author Name:
Linda C. Ray, BSN, RN
Joint Pain Relief
People with CMT experience joint pain because of the uneven distribution of muscle weakness we have around our joints as our disease progresses. This causes us to develop joint deformities and joint pain. Studies have s...
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Weakness as a Result of Taking Medications
Issue date:
Thu, 02/26/2004
Author Name:
Dr. Gareth Parry, Professor of Neurology, University of Minnesota
About weakenss related to taking medications Dr Parry Highlights:
1. Some drugs have been shown to cause nerve damage in CMT patients resulting in deterioration in strength that is not usu...
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Issues Related to Anesthetics and CMT
Issue date:
Mon, 02/23/2004
Author Name:
Dr. P.J. Halsall and Professor F.R. Ellis
Issues Related to Anesthetics and CMT
Many people are afraid of having an anesthetic, mainly through ignorance, but when we look at the rate of complications and even deaths arising from anesthesia we see t...
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Provigil: Putting An End To Sleepy Days
Issue date:
Sat, 02/21/2004
Author Name:
By Linda C. Ray, BSN, RN
PROVIGIL®/ALERTEC®
Many of us with CMT have learned that the fatigue-pain cycle is not one easily broken. We tire quickly, and when we’ve exhausted our energy, our level of strength is decreased. As a result, chronic pain...
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Hand Surgery - A personal choice
Issue date:
Tue, 02/17/2004
Author Name:
Eileen Garcia, B.C., Canada
Hand surgery
Look within yourself – talk to your hands and decide.
Watching the slow deterioration of the muscles, especially of my right hand, was frightening. I worried about losing my career working with people who are visu...
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Neurontin/Gabapentin -for Neuropathic Pain
Issue date:
Sun, 02/15/2004
Author Name:
Linda Ray, BSN, RN
The Use of Neurontin/Gabapentin -for Neuropathic Pain
The American Federal Food and Drug Administration (FDA) has approved Neurontin to reduce partial seizures in adults with epilepsy. Off label (without the approval of the FDA), it is used...
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Hand (night) splints & quality of life
Issue date:
Wed, 12/31/2003
Author Name:
former CMT International
Night splints and quality of life
It doesn't matter how many types of orthotics you use to help yourself, at one time or another, they may all seem too much and that's when we have to have the courage to say no more. Many people ...
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Q & A's about Bracing (AFO's)
Issue date:
Wed, 12/31/2003
Author Name:
former CMT International
When to brace?
Q: "I am interested in the wearing of splints or orthotic devices. I'd like to know whether it is better to wait as long as possible before using such aids or if I should have my children looked at and find out if they ...
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Anesthesia and the CMT Patient
Issue date:
Wed, 12/31/2003
Author Name:
Joseph F. Antognini, M.D. University of California Davis Medical Center
Anesthesia is safer now than it has ever been. This is particularly true for individuals who have medical problems, including patients with Charcot-Marie-Tooth disease. Two important reas...
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