Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
HNF

Bernadette

An Upcoming Documentary about Living with CMT

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Arlene has Plans... Big Plans!

Read all about Arlene in  Arlene on the Scene... available in September

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Hereditary Neuropathy Foundation, Inc.
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CMT TREATMENT ARTICLES

Aquatic Therapy: How this Warm-Water Exercise Could Help You

Issue date:  Wed, 02/14/2007 Author Name:  Christy Casamassima Last year, we profiled, Bernadette Scarduzio, a resilient young woman from Pennsylvania who is suffering with a case of CMT that has affected many aspects of her life. The disease has made her day-to-day existence extremely challenging, pa...


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Can Tai Chi Improve Peripheral Neuropathy? The Answer Is a Resounding "Yes!"

Issue date:  Sun, 02/04/2007 Author Name:  Christy Casamassima As most people with CMT know, peripheral neuropathy is a degenerative nerve disease with no cure and few effective treatment options—that is, until now. Can Tai Chi, a low-stress, ancient Chinese exercise regimen, help people with CMT...


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Active Isolated Stretching for CMT Patients

Issue date:  Mon, 01/15/2007 Author Name:  Christy Casamassima For most people, stretching is a great way to add flexibility and range of motion to an exercise routine. For people with CMT, targeted stretching can make all the difference in terms of achieving better movement and better quality of life...


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Aquatic Exercise for Kids with CMT

Issue date:  Tue, 12/05/2006 Author Name:  Christy Casamassima If CMT is affecting your child’s ability to be active, it might be worth looking into one of the many swimming programs offered across the county to young people with physical limitations, frequently also called, “Adaptive Aquati...


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Treating Children With CMT: An Interview with Robert Matthew Bernstein

Issue date:  Mon, 11/06/2006 Author Name:  Christy Casamassima This month, HNF interviews Robert Matthew Bernstein, MD, Director of Pediatric Orthopedic Surgery at Cedars-Sinai Medical Center and a member of the Cedars-Sinai Institute for Spinal Disorders and Cedars-Sinai Orthopedic Center. He is also...


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Reporting Adverse Drug Reactions

Issue date:  Thu, 06/30/2005 Author Name:  Susan Wheeler, Executive Director Why is this important? Sharing negative reactions that you experience when taking medication(s) is the only way the medical community and the public in general can be alerted to possible health risks and dangers. However, ...


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Pain Relief

Issue date:  Thu, 06/30/2005 Author Name:  Susan Wheeler, Executive Director Last December 2004, Pfizer was granted FDA approval for the medication Lyrica (pregabalin). This drug is earmarked to benefit neuropathic pain; both for peripheral neuropathy and postherpetic neuralgia; making it the first FD...


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Quiet Strength

Issue date:  Tue, 05/31/2005 Author Name:  Susan Wheeler, Director An interesting similarity to the vocal problems and symptoms of some people with cmt is a condition known as “spasmodic dysphonia”. Also a neurologically based condition where nervous signals to the vocal cords are disrupted ...


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A Bit of Sun …a Lot of Vitamin D

Issue date:  Tue, 05/31/2005 Author Name:  Susan Wheeler, Director Recent studies have reviewed the effects of vitamin D on health - aside from its effect on bones. In a controlled study of elderly women, those taking vitamin D and calcium had much better leg strength and fewer falls than the women ta...


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Anesthesia: Future News

Issue date:  Sat, 04/30/2005 Author Name:  Susan Wheeler, Director Anesthesia (a neuromuscular blocking agent or NMBA) that is administered in order to undergo surgery is one of the more frequent topics we are requested to advise about. The concern surrounds the possible effect(s) it may have for peop...


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