Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

THE FOUNDATION TO SUPPORT THOSE LIVING WITH CMT (CHARCOT-MARIE-TOOTH)
HNF

Bernadette

An Upcoming Documentary about Living with CMT

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Arlene has Plans... Big Plans!

Read all about Arlene in  Arlene on the Scene... available in September

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Hereditary Neuropathy Foundation, Inc.
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ALL HNF ARTICLES

Coping with CMT

Issue date:  Sun, 06/24/2007 Author Name:  Christy Casamassima When it comes to getting a diagnosis of a debilitating disease like CMT, you are likely to experience a wide range of emotions. Fear, sadness, anxiety, anger and even hopelessness are common. In many ways, patients who are diagnosed with C...


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CMT: A Disease with Many Faces, Part VII: John Kuwik

Issue date:  Sun, 06/10/2007 Author Name:  Christy Casamassima John Kuwik, 61, is a licensed Professional Engineer, and the co-founder and president of a simulation software firm with four locations. Married for 38 years with one grown daughter, Kuwik lives in Hudson, Ohio, with his family. An athlete...


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CMT: A Disease with Many Faces, Part VI: Jill Starkey

Issue date:  Mon, 05/28/2007 Author Name:  Christy Casamassima Since 2000, Jill Marlene Starkey (Schuster), a self-employed artist and teacher and divorced mother of two, has lived in Beulah, Colorado. Below, she talks candidly about her family history of CMT and how her financial limitations have imp...


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Treating Peripheral Neuropathy with Acupuncture

Issue date:  Sun, 05/20/2007 Author Name:  Christy Casamassima When we say “Peripheral Neuropathy” in relation to CMT, we are talking about a diagnosis that affects people in different ways. For some, it is the uncomfortable sensation of "pins and needles" or burning pain (especially at nigh...


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In Pain? Try Physical Therapy In Lieu of Drugs

Issue date:  Tue, 05/15/2007 Author Name:  Christy Casamassima A recent study by Swiss researchers at the University of Bern in Switzerland, suggests that the popular nutritional supplement Chondroitin may not prevent or reduce pain for arthritis. Thus, the American Physical Therapy Association (APTA,...


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CMT: A Disease with Many Faces, Part V: Diane Covington

Issue date:  Tue, 05/01/2007 Author Name:  Christy Casamassima Diane Covington, 51, of Broomfield, CO, is a mother of three grown children who recently split up with her husband. She works part-time for a wholesale tile and stone importer, helping clients choose the right materials in the design of th...


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CMT: A Disease with Many Faces, Part IV: Lisa Parks

Issue date:  Mon, 04/23/2007 Author Name:  Christy Casamassima Lisa Parks, 35, is Treasurer at the County of Sutter, California, Tax Collector’s office.  She is married to Charles Parks, 37. Together, they have four children, ranging in age from 3 to 15. Although Lisa doesn’t have CMT h...


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Exercise, Diet and Your Moods

Issue date:  Mon, 04/16/2007 Author Name:  Christy Casamassima Recently, in an article called, “The Moody Blues,” we talked about how your moods can affect your physical health. This time around, we discuss how physical activity—and even the foods we eat—can affect our moods, even ...


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A Man with a Family History of CMT Creates Website for People in "The Same Boat" to Share Their Problems

Issue date:  Wed, 04/11/2007 Author Name:  Christy Casamassima John Scarduzio lives with his wife and two children in Philadelphia. As a successful salon owner for over 28 years, he’s heard it all, and has found that he has a knack for helping others. After a variety of experiences where his insi...


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The Moody Blues: How Your Moods Affect Your Health

Issue date:  Tue, 04/03/2007 Author Name:  Christy Casamassima Full text available to Members Only. Please log in at the left side of the page to read the article. ...


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CMT: A Disease with Many Faces, Part III: Elaine Donhoffner

Issue date:  Tue, 03/27/2007 Author Name:  Christy Casamassima Elaine Donhoffner is a 47-year-old registered nurse who lives in Indianapolis with her husband, Tom. She talks about how she was always a "step behind" everyone in her physical abilities as a child growing up in Hopewell, Pa, and how CMT h...


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TyKiah Wright, CMT Sufferer and Founder of a Nonprofit Organization for People with Disabilities, Wins Prestigious Award

Issue date:  Sun, 03/25/2007 Author Name:  Christy Casamassima Washington, DC, March 7—TyKiah Wright, founder of WrightChoice, a nonprofit organization that places college students with disabilities into the workforce was chosen as one of two people to recieve this year's Paul G. Hearn / American...


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Does Reiki Offer Real Benefits or is it Just Hot Air? You Be the Judge

Issue date:  Mon, 03/19/2007 Author Name:  Christy Casamassima Back in 2003, The University of Wisconsin set out to learn whether or not Reiki, a Japanese method of imparting “healing energy” to patients, offers real benefits or is just bunk. While the results of that survey are not yet avai...


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CMT: A Disease with Many Faces, Part II: Jackie Feldman Sachs

Issue date:  Sun, 03/18/2007 Author Name:  Christy Casamassima Jackie Feldman Sachs, 45, is a background investigator who lives with her husband, Iren, her 18-year-old son, Brian, and her 14-year-old stepson, Evan, in Owings Mills, MD. She recounts her story of getting diagnosed with CMT in her twenti...


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HNF Fashion Series, Part 3: Shoes!

Issue date:  Wed, 03/14/2007 Author Name:  Terri Eickel Finding shoes is hard for most people - it is even harder if you have CMT! Our President, Allison is committed to finding attractive, functional shoes and letting you know about them.  Allison wears the Helios brace and knows first-hand how ...


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