Some people write their biography. Being a writer and an artist, I twisted myself inside out for several years trying to figure out how I could tell the story of my life with CMT in words and pictures.
Linda Crabtree writes a touching and honest account of her mother's life with CMT and dementia.
Controlling your cholesterol level is important for everyone, especially if you have Charcot Marie Tooth disease. People with CMT can't take statins because they are contraindicated and can worsen or accelerate the progression of CMT. In the first article in our two-part series, Cholesterol and CMT, we give you the basics of cholesterol, plus healthy lifestyle tips to keep you at your best. Next week, look for our next article, The Top Ten Foods That Fight Cholesterol.
Linda Crabtree offers a message of inspiration during the holiday season, a message that we can take with us all year long.
Most people can relate to the difficulty of traveling, whether it is making sure all your sightseeing destinations are handicapped accessible or getting around your place of interest in braces or a wheelchair. A lot of times, you have to deal with just plain old fatigue. Read this article by Linda Crabtree as she prepares for a trip to NYC and faces some of a CMTer's unique challenges regarding travel.
Worried about the flu? You're not alone. Recent news reports found that 22 million people have been sickened by the H1N1 virus this year already. With the flu season around the corner, it is important to take every precaution to protect your health. Read the article from Linda Crabtree for tips to keep you and your family healthy this year.
What would you do if you didn't have Charcot Marie Tooth disease? In this article, Linda Crabtree interviews people to find out what they would do if a cure were found tomorrow.
Researchers at the Washington University School of Medicine in St. Louis identified a gene that they think may be involved in triggering neuropathy due to injury.
This is the fourth and final part in a series of articles on sex, sexuality, self-esteem and Charcot Marie Tooth disease that I’m writing for this website. In this article, I talk about our bodies and our sex lives and things get much more explicit. Life is to be enjoyed. Sex is part of life and having a bit of fun certainly can't hurt anyone. Again, this column is not for those under 12.
Summer after summer, women with Charcot Marie Tooth disease struggle to answer that age-old question, "What will I wear?" This summer, however, that question is answered by pulling out this season's must-have item, the maxi dress. Long, flowing, and sexy, the maxi dress puts the focus on you, not your CMT!
Maintaining an healthy weight is important for people with Charcot Marie Tooth syndrome, however, designing a diet and exercise plan that helps you lose weight without fatiguing your muscles can be difficult. Recent studies have shown that certain foods can help with muscle recovery following a workout, so we have compiled a list of them to help you achieve your optimum health.
Linda Crabree writes the third in a four-part series on how to navigate relationships when you have CMT.
An exciting partnership was announced on June 15 by Ipsen, a pharmaceutical company, and Pharnext SAS, a biopharmaceutical company.
A recent study on ascorbic acid shed more light on its potential for treatment in children and researchers remain hopeful that ascorbic acid could be beneficial to children with mild CMT.
This is the second part in a series of articles on sex, sexuality, self-esteem and CMT that I’m writing for HNF. As I begin to talk about us as older individuals it will get more explicit. Hedging around concerns and problems doesn’t help anyone. If young children read this, they might worry about something they can’t quite comprehend. It might be best to restrict it to those 12 years of age and older.