Comments for Charcot Marie Tooth (CMT)

Comment on Team CMT by carol

carol — Wed, 01 Feb 2012 22:09:45 +0000

Absolutely! Feel free to email the team run4cmt@yahoo.com. We welcome new team members!

Comment on Team CMT by dlp

dlp — Mon, 30 Jan 2012 21:11:50 +0000

Can others join Team CMT?

Comment on Team CMT by don beets

don beets — Mon, 30 Jan 2012 18:51:51 +0000

thx for the heads up. would like any new info that comes along. have been
diagnosted with charcot-marie-tooth type 2, gbs, cidp all at the kc va med ctr. am taking lyrica but not
much effect.

Comment on May 6, 2012: Five Boro Bike Tour by carol

carol — Tue, 17 Jan 2012 00:38:47 +0000

Absolutely! Please contact Allison, allison@hnf-cure.org, or call at 212-722-8396. We’d love to have you join us!

Comment on May 6, 2012: Five Boro Bike Tour by Christine Mckeever

Christine Mckeever — Mon, 16 Jan 2012 22:46:00 +0000

Was wondering if there was any spots left for me and a couple of friends for the 2012 bike tour. thanks

Comment on Charcot-Marie-Tooth Awareness: In the News! by Deborah Cripple

Deborah Cripple — Fri, 06 Jan 2012 20:15:12 +0000

My Dad came from Italy & had CMT & I also have it. He always said the diesease came over from Europe, has anyone else ever heard that?

Comment on Charcot-Marie-Tooth Awareness: In the News! by Deborah Cripple

Deborah Cripple — Fri, 06 Jan 2012 20:03:56 +0000

I too have CMT & it’s so good to hear other with the same problems…I was diagnosed back in 2000. My dad & my Brother also have it. My older brother is fine. I also have major heqaring loss in both ears & wear AFO’s.

Comment on Charcot-Marie-Tooth Awareness: In the News! by ehusevia coronado alva

ehusevia coronado alva — Tue, 03 Jan 2012 03:50:59 +0000

I WAS SO GLAD TO HEAR ABOUT THE NEWS ABOUT A DOCUMENTARY BEING MADE…. I HAVE THREE BROTHERS, AND A SISTER THAT LIVE WITH IT EVERYDAY AND I SEE WHAT IT HAS DONE TO THEM MY PRAYERS FOR U AND YOUR FAMILY……

Comment on Charcot-Marie-Tooth Awareness: In the News! by Frances Koonce

Frances Koonce — Thu, 29 Dec 2011 17:48:29 +0000

I’m very excited to see this documentary ! My husband and several of his family members suffer from CMT as well as hearing loss due to this illness . Does anyone suffer from intestinal problems also ? Concerned for family who has constant digestive problems …

Comment on Charcot-Marie-Tooth Awareness: In the News! by Karen Heinert

Karen Heinert — Thu, 29 Dec 2011 17:37:40 +0000

My husband, now 52, was diagnosed with CMT about 24 years ago. We have been fortunate that his progression has been slow. Years of stumbling has now progressed to actually falling. He has broken his ankle, arm, and most recently his wrist. We find many doctors in our area do not know enough about CMT. When my husband broke his wrist he was questioned by two ER nurses and doctor if he drank alcohol or took street drugs. Even after telling them he had CMT they would question him.