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Marathons

We believe that exercise is essential for those living with CMT.  Run a marathon??  Well, okay, not everyone–even those without CMT–can run a marathon.  But there are many who can, and many who care about us run to demonstrate their commitment to the cause.  Beginning with Kim Farren at the Richmond Marathon in 2011, we thank those who “run for a cure” and join us to pursue treatments and a cure for this difficult disease.

 

 

Joe Torello, Music Man

Joe Torello is not an easy man to keep up with. The 31 year old actor, singer and dancer has performed in 47 of the 50 United States.  Most recently he could be found in New York.  That is, when he wasn’t in California or Connecticut. Fresh off his 425th performance in “The Music Man,” Joe who dances and sings bass in its barber shop quartet, is training to run his first half-marathon.  In a few weeks, Joe is heading to Philadelphia.  He will join the cast of ‘The Music Man” during its run at the Walnut Theatre from November 6, 2012 until January 6, 2013.  It is in Philly, on the morning of Sunday, November 18 that Joe intends to add “runner” to his list of accomplishments.  Following the half-marathon, Joe plans to perform in two shows that same day. While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF) http://hnf.donorpages.com/TeamCMT/JTorello1/.  So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well. In 2001, Joe was invited to join his friend Kim on her runs “even if we walk it together,” she offered.  Years later, Kim suggested Joe try for a half-marathon.  He began by walking on a treadmill, set at an incline, while he held on. “In time, it became easier and I started running on the treadmill,” his excitement evident in his smooth voice.  “I never thought I could do it. I find it very freeing, especially when I am outside.” Joe explained how he would alternate running and walking and with amazement...

Team CMT leader finishes second at Boston Marathon

Congratulations to Chris Wodke, manager of Team CMT, who placed second in the Mobility Impaired Division of the 2012 Boston Marathon on April 16! An accomplished athlete who has participated in triathlons, Chris never thought she would be able to run Boston. The oldest annual marathon, Boston ranks as one of the world’s most prestigious events. When Chris received her acceptance letter she told us “it is an honor and I am humbled. This is the achievement of a dream that seemed out of reach.” With temperatures on race day beginning at 79 degrees and climbing well into the high 80’s, it took all of Chris’ training to get her through. Excitement the morning of the race was high and Chris declined the deferment she was offered due to the extreme temperatures. “I felt like I’d been training for this race my whole life. I was ready to go. I was injury free and ready to do my third marathon in a year. As the signs say in every town: Team CMT was all in.” At 7:00 am, with only four and a half hours sleep, Chris boarded the bus that would carry runners to the athletes’ village arriving two and a half hours before her start time. She spent that time listening to music and thinking about the race. Initially Chris hoped to “not just run but run well, finishing in four hours and forty-one minutes.” The increasing temperatures forced her to reconsider and Chris changed her goal to “surviving the heat and finishing.” Hydration became the most important word of the day. Marathon officials planned three cups...

April 16, 2012: Team CMT Leader to Run Boston Marathon

When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is an honor and I am humbled. It is the achievement,” she explains, “of a dream that seemed out of reach.” As manager of Team CMT and in partnership with The Hereditary Neuropathy Foundation, Chris intends to use this opportunity to raise awareness about CMT on a grander scale. “I want everyone with CMT to be able to say they have it and not get a blank stare,” she said. “We need to raise awareness because with awareness comes money and treatments and cures. I hope by raising awareness a physical therapy student wants to devise therapies to help and a medical student wants to research cures.” Chris, 53, has been dealing with CMT symptoms her entire life but she wasn’t diagnosed until August of 2010, even though fourteen years ago she was seen by a neurologist following a bike accident which left her with amnesia. The doctor performed a nerve conduction test, including tests for MS and ALS. But he totally missed the most common one: CMT. Then about four years ago, her father told her that he and his sister had a genetic nerve disorder. The doctor told them, “don’t worry about what it is called.” Finally, two years ago her nieces were diagnosed with CMT. “I went online and was able to put a name to the symptoms I’ve had my whole life: high arches, muscle weakness...

Saturday, Nov 10, 2012: Richmond Half-Marathon Fundraiser

  The Richmond, Va branch of Team CMT, Richmond, VA will participate in the American Family Fitness Half Marathon on Saturday, November 10, 2012.  Team CMT will be running on behalf of the Hereditary Neuropathy Foundation to raise awareness of Charcot-Marie-Tooth disease. As part of Richmond’s famed Marathon event, “The American Family Fitness Half Marathon” features a tour of some of Richmond’s most beautiful and historic neighborhoods and is perfect for runners and walkers of all abilities who want to be a part of a great running event. The same first-class service that makes this “America’s Friendliest Marathon” [Richmond] elevates the American Family Fitness Half Marathon to a premier experience for all participants. There will be a Cheer Challenge set up along the route.  Following the race, there will be a party from 7-10pm with drinks, dinner and a silent auction.  More details to follow soon. Please join us that evening at our fundraising dinner. Click here to find out more and...

Running Marathons to Raise Awareness of Charcot-Marie-Tooth

“America’s Friendliest Marathon,” held in Richmond, VA this past weekend, included some important friends of the Hereditary Neuropathy Foundation who ran to raise awareness of Charcot-Marie-Tooth and to generate funds for research to find a cure. Kim Farren was the star of the day, completing her first marathon in honor of her sister, HNF founder Allison Moore, and the millions like her who live with CMT. It was an emotional and exhilarating day.  A crisp breeze mixed with sparkling sun to make the perfect day for runners and cheerleaders alike!  A crowd gathered at mile 22 to bring Kim home to the finish line.  Her sister Courtney even joined her for that last leg.  In all it was an amazing accomplishment that symbolizes the commitment of our partners in this mission to support those living with CMT. Of course we held a big celebration hat evening to congratulate Kim!  Thank you to Party Ease, LLC, who did such a great job catering the event.  In all, several thousand dollars was raised in pledges and contributions–thank you so much to all who donated! If you haven’t already, please consider a donation on Kim’s behalf.  Thank you so much! Take a look at pictures on facebook, and watch our video below!...
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