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2015 TD Bank Five Boro Bike Tour

bikenyThe 2015 TD Bank Five Boro Bike Tour is an amazing event.  Taking place the first Sunday in May each year, the adventure starts in Lower Manhattan. The ride heads north through the heart of Manhattan into Central Park and continues on to historic Harlem and the Bronx, returning south along the East River on the FDR Drive. From there it crosses into Queens and then Brooklyn, where cyclists take over the highway before making the thrilling climb up—and down—the Verrazano-Narrows Bridge to Staten Island. The route is 42 miles, mostly flat except for the bridges.

In 2011, HNF began participating in this event, both to raise awareness of Charcot-Marie-Tooth and to show the world that people with CMT can exercise and ride! Since our first ride, we have raised over $85,000 for CMT research.

Read the New York Daily News article!

We have applied again for 2015, and hope to be chosen for the fifth year as a charity partner. For anyone interested in joining us, please contact [email protected]

Making a difference in the CMT Community

I just love this time of year. Spring is in the air and everything is coming back to life again, finally.  Birds singing, warm breezes blowing, and sweet smells filling the air. This time of year is easier for me to handle considering I have Charcot-Marie-Tooth (CMT) disease. On May 3rd I will be in New York and participate in the TD Five Boro Bike Tour. I will be riding with Team CMT to raise awareness and help in finding a cure for CMT, the most common hereditary neurological disorder affecting 1 in 2500 people in the US. This disease makes life a little more trying every day, offering new challenges as progression kicks in. I am amazed beyond words to have the opportunity to make a difference in our CMT community and zero in on a cure. As I prepare for the ride in the upcoming weeks I often find myself a little less than average, feeling the ill effects of CMT and other issues affecting my body. I discovered the help I need to push through and my friends that share the struggle with me. I open up social media and read stories of the struggles of people, people I call my friends. lf I have the chance to help change the lives of the people I care about you best believe I am going to pedal for it! Please consider supporting...

Bike NY Spotlight: Kristin Gelzins

Growing up, I was an all star softball player and an avid runner. Nothing could hold me back from just about anything, from skiing to hiking, biking and kayaking. I was in school to get my nursing degree while I worked as an EMT which I loved doing. When I was 21 years old I worked down at the World Trade Centers as an EMT which set my asthma into overdrive. The many attacks I had landed me in the hospital and on steroids numerous times. At 22 I had lost a significant amount of muscle tone in my legs, and developed avascular necrosis (is the death of bone tissue due to a lack of blood supply). I was sent to a neurologist who at the time treated all of the current problems I was having with the steroid (prednisone). After about a year of seeing no improvement, I wasn’t taking any excuses. I was put through test after test. I had both of my hips replaced after failed bone grafts at age 28, and by the time I was 29, I was pregnant and relying on crutches and a wheelchair to get around. I went back to my neurologist and demanded answers. After he was done looking over all of my testing, including the genetic testing that was done years before, the words CharcotMarie-Tooth came out of his mouth. Now it finally all made sense to me. I now know what I’m dealing with, and I’m glad I pushed for answers. Since I’ve had my son, I stopped relying so heavily on my wheelchair and started becoming more...

HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014

  HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments and a cure. This year we were given 10 spots! Team CMT members will have first dibs. For more information contact [email protected] to be a part of the Five Boro Bike Tour to ride with the Hereditary Neuropathy Foundation, so dust off that Schwinn and meet us in the Big...

A Great Ride at Bike New York

“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th. “It was a great day. There was music playing along the route, the weather was amazing and thanks to our wonderful riders, we raised $ 25,000 for CMT!” exclaimed Allison Moore, founder and director of HNF. “We are extremely grateful to the NY Bike Tour for the opportunity to participate in this ride.” Among the fourteen Team CMT members was John White of Virginia. John drove to New York on Saturday with his friend and “cycling buddy” Dave McClure. After settling in a comfortable hotel in Chinatown they enjoyed touring the area, eventually meeting relatives for dinner in Greenwich Village. Early Sunday morning John and Dave met the rest of the team in lower Manhattan, despite the enormous crowd. “There was a staggered start, which was incredible,” said Allison. “Because of that, there weren’t any bottlenecks.” With 32,000 cyclists riding that day, it was quite an accomplishment! Over the next four hours, the members of Team CMT rode with an occasional break at one of the well-stocked rest stops. They appreciated the abundance of water, bananas, Lara Bars and other healthy snacks. Team CMT stayed near each other enjoying the sights of NY while they chatted with old friends and made new ones. “People were really interested to learn about CMT,” said Allison. “We talked about our dedication to making lives better, and the great strides our amazing researchers have made toward finding a cure one day.” “What I found extraordinary about this ride,” commented...

May 5, 2013: Five Boro Bike Tour

HNF is thrilled to have been chosen this year as a Charity Partner for the TD Bank Five Boro Bike Tour.  This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments and a cure.  Click on the button below to register to ride or to sponsor a rider. You won’t want to miss this!  The only way to be a part of the Five Boro Bike Tour is to ride with a Charity Partner like the Hereditary Neuropathy Foundation, so dust off that Schwinn and meet us in the Big Apple! Read more about this amazing event in the New York Daily News article from last...
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