September Is CMT Awareness Month

Get Involved Today!

The Hereditary Neuropathy Foundation (HNF) is determined to keep pushing boundaries for CMT awareness–and we especially need your help during CMT Awareness Month! Join us throughout the entire month of September so, together, we continue our mission to increase awareness, raise research funds, and find a cure for CMT!

HNF has planned some exciting events and initiatives to observe CMT Awareness Month.  We encourage you to do your part as well by either joining our activities or create your own campaigns!

We are thrilled with the strides being made by our community–people with CMT, family members, healthcare professionals, researchers, and industry together–let’s use this important month to continue our efforts to forge ahead!

Here are a few ways you can get involved TODAY!

 

“Band Together For CMT”

With and without CMT, exercise is a great way to stay in shape, to keep active, and to help attain and maintain a healthy lifestyle. Exercise helps people with CMT improve strength, function, and quality of life.

To help jumpstart your efforts, with a $25 donation in recognition of September CMT Awareness Month, HNF will send you a guided book of exercises with three resistance bands for your use!

 

Social Media

We all know the power of social media to spread the word and connect our community! During September, please share our posts on your social media platforms and engage with us on how we can better support you and others with CMT/IN.  We will be featuring an interactive “Question of the Week” to encourage online conversations and discussions.

Zumbia Live Weekly

To get free access to watch and interact on our weekly updates with Bernadette Scarduzio, please visit www.ZubiaLive.net, quickly register and either download the iPhone app or watch the broadcasts on your computer by searching “CMT”.

Kid’s Coloring Contest

Any young Picassos out there? We’re calling all kids to show us their creativity during September by having kids participate in HNF’s “Kids Coloring Contest”.

Increase awareness in the community about Charcot-Marie-Tooth:

Download and print out our special “Diagnostic Chart” and post them wherever you can to help increase awareness. At work, the coffee shop, your doctor’s office, the post office, schools, churches, and anywhere else you might think of–share them broadly  to help promote improved diagnosis and recognition of CMT!

Neurotoxic Drug Card

Individuals affected with neuropathic diseases, such as CMT, may be more vulnerable to the effects of certain medical conditions, stresses, and medications.

HNF has created a neurotoxic drug fact card that alerts CMT patients about medications that may worsen their neuropathy. With just a minimum donation of $10, you can receive one of these special wallet cards.