Ride For Charcot-Marie-Tooth Awareness & Research: 2016 TD Bank Five Boro Bike Tour

Ride For Charcot-Marie-Tooth Awareness & Research: 2016 TD Bank Five Boro Bike Tour

The Hereditary Neuropathy Foundation (HNF) is thrilled to participate as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour for the fifth year in a row. This is an extraordinary event where participants bike through all five New York boroughs to help increase awareness and raise dollars to fund Charcot-Marie-Tooth (CMT) research.

My last month in numbers

My last month in numbers

It has been entirely too long since I’ve updated my blog and so much has happened since late April. I thought I would share some info on what I’ve been up to since my last post on April 29th Miles Ridden:  1,013.81 Time spent on a bike:  77 hours, 04...
Member Alyson O’Connor Won’t Let Her CMT Stop Her!

Member Alyson O’Connor Won’t Let Her CMT Stop Her!

Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.

School Outreach Program and Team CMT Kids

School Outreach Program and Team CMT Kids

Arlene is going to Dallas! HNF has added a new component to its successful School Outreach Program, aimed at deepening students’ understanding of disability as a difference that can be embraced as one part of a beautiful whole. Through Team CMT Kids, schools can join...
TEAM CMT & CHRIS WODKE

TEAM CMT & CHRIS WODKE

Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.  Founder Chris Wodke created Team CMT in January 2011 specifically to raise funds and awareness.  “When I started this team...