Personal Profiles

Personal Profiles for Newletters

One Woman’s Success with Surgery

One Woman’s Success with Surgery

The only thing Sarah Clauss has given up because of Charcot-Marie-Tooth (CMT) is waterskiing.  “I live on the lake so I attempted waterskiing but…,” jokes the 25 year old, Lake Wallenpaupack, Pennsylvania resident, “it wasn’t… Continue reading

NYC bike ride to highlight rare neurological disorder

By: Will Sloan

Five-year-old Aiden Kelly was diagnosed with Charcot-Marie-Tooth Disease (CMT) last April, but for the Wellesley boy, the impact of this rare disease has only revealed itself gradually.

“He found out last year, and I don’t… Continue reading

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