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First Spin-a-thon of 2012 a Smashing Success!

First Spin-a-thon of 2012 a Smashing Success!

“What a success!” Lori Mattheiss exclaimed, referring to HNF’s first Spin-A-Thon of 2012, held at The Club in Morristown, New Jersey, on Saturday March 31. Lori was lead organizer of the event. “We had such a great time! It was a cold, crummy, rainy day but we had a lot of fun.” Following two spin sessions, everyone gathered for a yummy brunch of bagels, lox, spiral sandwiches, cookies and brownies, complete with Bloody Mary’s for the adults. “I really liked being able to talk to everybody,” Lori said. “It was nice to really connect with the people who came out to support us.” In addition to donating space for the Spin-A-Thon and brunch, The Club encouraged attendees to make use of all the facilities for the day. Families attending with small children were especially excited to use the salt generator pool. Toward the end of the brunch, eight assorted gift baskets were raffled off, raising an additional $400 for HNF! The themed baskets included: Mary Kay Cosmetics, Girl Scout cookies, a wine party, baby showers and a spa basket. They were for the most part created by Lori’s daughter, Kaitlyn. Kaitlyn works endlessly to increase awareness of CMT on behalf of her brother Jacob. Sponsors included Paula Shiff of Zrii, a range of nutritional supplements that “Balance the Mind, Body and Soul.” Paula distributed samples of the protein/meal replacement drink. Cathy, from Affiliated Foot and Ankle Center in Howell, NJ, also attended, representing Dr. Alison DeWaters who works with patients with CMT.  And thanks to Hilton for donating coffee and providing tables/cloths! Thank you to everyone who, by working together,...
Spotlight on the Mattheiss Family

Spotlight on the Mattheiss Family

Last summer we introduced you to the Mattheiss Family of Millington, NJ. Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community. Soon after Jacob, now 13 and an avid fencer, was diagnosed with CMT, the family joined the South Jersey CMT support group. In September 2010, during New Jersey’s first CMT Awareness month, the support group held a “Dining to Donate” night in conjunction with local restaurants. The Mattheiss’ spent the evening at the Sterling Diner in Longhill Township distributing balloons, stickers and brochures about CMT. The diner then contributed a percentage of their receipts plus $100 to CMT awareness. The following spring the family held a garage sale during which Jacob announced his intent to donate his share of the profits. The local Elks Lodge matched Jacob’s amount for a total contribution of $400. Last July, the Mattheiss’ helped host a CMT Awareness Night at a Somerset Patriots baseball game. Over 2000 people in attendance learned about CMT and helped raise money for research through a raffle and silent auction. This awareness and fund-raising spirit has spread through the whole family. Sixteen year old Kaitlyn, as part of her Girl Scout Gold Award project, set up a booth at a local street fair this fall to hand out bookmarks and goodie bags containing information about CMT. When Assemblyman Jon Bramnick and Assemblywoman Nancy Munoz of Morris County, NJ’s district 21 stopped by her booth, they were so impressed they asked how they could help her cause. Kaitlyn also created videos about Jacob’s experience with CMT. Next up for the...