Spin-a-thon

Spin / Yoga for a Cure: Thursday September 27th Hot Ryde Roslyn, New York

The Hereditary Neuropathy Foundation (HNF) “Spin/Yoga for a Cure” will be held Thursday, September 27, 2012.  This amazing event begins at 11:00 AM at Hot Ryde Studio, Roslyn, NY with one-hour Spin/Yoga sessions.   Participants will enjoy a gift bag donated… Continue reading

Hampton’s Spin 2012: Booming Success

Rainy weather in New York didn’t deter 125 people from attending The Hereditary Neuropathy Foundation’s 4th Annual Hampton’s Spin Event on July 28 to raise awareness and research funds for Charcot-Marie-Tooth.  The Spin portion of the day began at… Continue reading

Personal Profile: Nick Zappola

There is a lot of good news surrounding Nick Zappola, of Sag Harbor, NY.  Nick, who we introduced last year, was diagnosed with severe hip dysplasia and CMT when he was 13.  Now 19, Nick currently attends Lynn University… Continue reading

July 28, 2012: Hamptons Spin-a-thon & Party!

The Hereditary Neuropathy Foundation (HNF) is thrilled to partner with B East Amgansett, NY and The Breakwater Yacht Club, Sag Harbor, New York, for our Fifth Annual Spin for the Cure. There will be two 45 minute sessions.… Continue reading

First Spin-a-thon of 2012 a Smashing Success!

“What a success!” Lori Mattheiss exclaimed, referring to HNF’s first Spin-A-Thon of 2012, held at The Club in Morristown, New Jersey, on Saturday March 31. Lori was lead organizer of the event. “We had such a great time! It… Continue reading

Spotlight on the Mattheiss Family

Last summer we introduced you to the Mattheiss Family of Millington, NJ. Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community. Soon after Jacob, now 13 and an avid fencer, was… Continue reading

Spin-a-thon 2011

Spin For the Cure 2011 was an amazing success!!  Over $80,000 was raised to support the mission of the Hereditary Neuropathy Foundation in raising awareness of Charcot-Marie-Tooth and to support those living with CMT and their families.

 

 

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