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Hampton’s Spin 2012: Booming Success

Hampton’s Spin 2012: Booming Success

Rainy weather in New York didn’t deter 125 people from attending The Hereditary Neuropathy Foundation’s 4th Annual Hampton’s Spin Event on July 28 to raise awareness and research funds for Charcot-Marie-Tooth.  The Spin portion of the day began at 7:30am at B-East...
Personal Profile: Nick Zappola

Personal Profile: Nick Zappola

There is a lot of good news surrounding Nick Zappola, of Sag Harbor, NY.  Nick, who we introduced last year, was diagnosed with severe hip dysplasia and CMT when he was 13.  Now 19, Nick currently attends Lynn University in Boca Raton, FL, with plans to go into the...
Spotlight on the Mattheiss Family

Spotlight on the Mattheiss Family

Last summer we introduced you to the Mattheiss Family of Millington, NJ. Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community. Soon after Jacob, now 13 and an avid fencer, was diagnosed with CMT, the family...
Spin-a-thon 2011

Spin-a-thon 2011

Spin For the Cure 2011 was an amazing success!!  Over $80,000 was raised to support the mission of the Hereditary Neuropathy Foundation in raising awareness of Charcot-Marie-Tooth and to support those living with CMT and their families.        ...