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Sixth Annual Card Party Brunch

Sixth Annual Card Party Brunch

On January 23, 2015 dedicated H.E.L.P. (Help Elliot Live Proud) Fund supporters participated in the 6th Annual Card Party Brunch and Boutique at Broken Sound County Club, Boca Raton, Florida. Record numbers flocked into the picturesque country club for a day filled with gourmet food, raffles, cards and a silent auction! HNF Board member Iris Adler increased this event by 50 new faces this year!

Sunday May 3, 2015: 2015 TD Bank Five Boro Bike Tour

Sunday May 3, 2015: 2015 TD Bank Five Boro Bike Tour

HNF is thrilled to have been chosen for the fourth year as a Charity Partner for the 2015 TD Bank Five Boro Bike Tour.  This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments...
CMT Research Update: The Drug Discovery Process

CMT Research Update: The Drug Discovery Process

A recent, informative article from the MDA outlined the process for bringing a drug to market. What’s striking is the length of this process, particularly within the context of the search for a cure for Charcot-Marie-Tooth.

Once a drug appears to work effectively in mice, it must undergo further testing before it can be used on humans in clinical trials. Over an approximate two year period, researchers work to determine if that drug has the best chance of having the desired effect on the disease with the lowest possible harm to the patient. Then toxicology studies must be done to show the U.S. Food and Drug Administration (FDA) that the drug is safe and likely to be effective. Further they must determine how to administer the drug and at what dosage. This preclinical research takes five to seven years and costs millions of dollars.