Joseph Torello: HNF Supporter and lives daily with CMT
SAVE THE DATE: 8TH ANNUAL HNF GOLF EVENT: THE DICK SHARPE MEMORIAL GOLF OUTING
One Woman’s Success with Surgery
One Woman’s Success with Surgery
The only thing Sarah Clauss has given up because of Charcot-Marie-Tooth (CMT) is waterskiing. “I live on the lake so I attempted waterskiing but…,” jokes the 25 year old, Lake Wallenpaupack, Pennsylvania resident, “it wasn’t… Continue reading
A Passionate Plate: White Wine Spaghetti
My name is Joy Aldrich. I have CMT and I’m a food blogger. I’m so thrilled to partner with Hereditary Neuropathy Foundation by writing this column where I hope to inspire you to enJOY making healthy and simple, yet elegant… Continue reading
Sunday, November 3, 2013: Grace’s Courage Crusade Brunch
We’ve set the date, now we need you to do the same! Don’t miss this fantastic event! The atmosphere of scenic Newport, RI, the fabulous food, and the desserts! You have to experience it to understand why folks keep coming… Continue reading
January 31, 2014 – Bridge/Brunch Fundraiser
Charity Card Party Brunch and Boutique
Please join us January 31, 2014 at 10:30 at the Broken Sound Country Club, Boca Raton Florida. Join Board Members Iris and Nat Adler for an exquisite brunch and card party to benefit the H.E.L.P… Continue reading
Posted in Coming Events, Events, Special Events | 
Charcot-Marie-Tooth, CMT, fundraiser, iris adler, research | 
4 CommentsHNF Charity Partner for the MetroTex Charitable Trust Run For Fun Irving, Texas: Saturday May 3, 2014
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MetroTex Association of REALTORS Charitable Trust
DFW Get Fit 10K ~ 5K ~1M Fun Run – Saturday May 3, 2014
9:00am – 12:00pm
The Hereditary Neuropathy Foundation (HNF) has been chosen as the Charity Partner for the MetroTex Charitable Trust… Continue reading
Personal Profile: Estela Lugo, Designing Décor
Designing Décor that Helps
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers. When they were diagnosed with Charcot-Marie-Tooth Disease (CMT) Lugo… Continue reading
HNF Charity Partner: TD Five Boro Bike Tour May 5, 2013
HNF is thrilled to have been chosen for the 3rd year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised… Continue reading
Grace’s Courage Crusade Brunch 2012
Warm temperatures and brilliant sunshine welcomed several hundred guests attending Grace’s Courage Crusade this year. Held on October 21, 2012 at the Atlantic Beach Club in Newport, Rhode Island overlooking the water, supporters gathered for brunch and fun. Grace’s Courage… Continue reading
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