On January 23, 2015 dedicated H.E.L.P. (Help Elliot Live Proud) Fund supporters participated in the 6th Annual Card Party Brunch and Boutique at Broken Sound County Club, Boca Raton, Florida. Record numbers flocked into the picturesque country club for a day filled with gourmet food, raffles, cards and a silent auction! HNF Board member Iris Adler increased this event by 50 new faces this year!
Hereditary Neuropathy Foundation (HNF) is excited to participate for the fourth consecutive year in the TD Bank Five Boro Bike Tour. It’s an honor says Allison Moore, Founder/CEO of HNF to once again be chosen as a charity partner in one of the biggest events in New York and the largest cycling event in America.
To raise awareness and fund research for CMT6 in Webster, New York!
FACEBOOK CHAT: “Rare Neuropathies: Getting Diagnosed, Getting Help”
WHEN: September 17, 2014 (7-8:30 p.m. EST)
A recent, informative article from the MDA outlined the process for bringing a drug to market. What’s striking is the length of this process, particularly within the context of the search for a cure for Charcot-Marie-Tooth.
Once a drug appears to work effectively in mice, it must undergo further testing before it can be used on humans in clinical trials. Over an approximate two year period, researchers work to determine if that drug has the best chance of having the desired effect on the disease with the lowest possible harm to the patient. Then toxicology studies must be done to show the U.S. Food and Drug Administration (FDA) that the drug is safe and likely to be effective. Further they must determine how to administer the drug and at what dosage. This preclinical research takes five to seven years and costs millions of dollars.
We are pleased to announce the Hereditary Neuropathy Foundation’s Second Annual Dick Sharpe Memorial Golf Outing – in memory of the recent passing of our dear friend, father & board member – to take place at the prestigious North Hempstead Country Club Port Washington, NY on Monday, September 22, 2014.
Grab your shoes and spin CRANK Style NYC!
When: Saturday, September 27, 2014
Where: 1658 3rd Avenue New York, NY 10128 (between 92nd & 93rd Street Upper East Side)
Time: 1:00 – 3:00 pm