Sept. 27, 2012: Sixth Annual Golf Fundraiser
Save the date and stay tuned for more details on the Hereditary Neuropathy Foundation’s Sixth Annual Golf Fundraiser. This is one of our biggest events of the year, and we are planning for the most amazing golf event yet!
This… Continue reading
Spotlight: Bike New York Riders
You can ride this year too! Click here for details!
On Sunday, May 6, 2012 among the crowd of 32,000 cyclists expected to participate in New York City’s TD Five Boro Bike Tour will be two busy New Yorkers cycling… Continue reading
Spotlight on the Mattheiss Family
Last summer we introduced you to the Mattheiss Family of Millington, NJ. Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community. Soon after Jacob, now 13 and an avid fencer, was… Continue reading
July 2012: Hamptons Spin-a-thon!
It’s coming! The annual Hamptons Spin for the Cure is happening once again, and you don’t want to miss it!
We’ll have all the details as the event gets close. Stay tuned!
Watch the video from last year, and get ready to spin!
March 31, 2012–Spin for the Cure, New Jersey!
Join us for our first Spin for the Cure of 2012!
On Saturday, March 31st from 10am-12pm we’ll be spinning away at The Club at Morristown, 118 Headquarters Plaza, Morristown, NJ. There will be two 45 minute… Continue reading
Oct 21, 2012: Grace’s Courage Crusade Brunch
We’ve set the date, now we need you to do the same! Don’t miss this fantastic event! The atmosphere of scenic Newport, RI, the fabulous food, and the desserts! You have to experience it to understand why folks keep coming… Continue reading
More Magazine features story on Charcot-Marie-Tooth
A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth. From training for the New York marathon, to being diagnosed with cancer, through chemotherapy that brought out severe… Continue reading
HNF to fund promising research on Charcot-Marie-Tooth
Planning, shopping, wrapping, baking–December can be so exhausting. In the middle of all the holiday activity, HNF would like to stop and shout a huge “thank you” to our supporters! Please read the latest progress on HNF-funded research. Your dollars… Continue reading
Charcot-Marie-Tooth Awareness: In the News!
NBC10 in Philadelphia featured a story on Bernadette Scarduzio, one of HNF’s most prominent partners who is the subject of an upcoming documentary, Bernadette. HNF sponsored the making of this documentary which is scheduled to be released in the… Continue reading
CMT Research Update: HNF-Funded Projects
HNF puts your dollars to work! We are currently funding two very important research projects, one for CMT type 1 and the other for CMT type 2A.
Charcot-Marie-Tooth, Type 1
CMT type 1 is caused by a defect in the… Continue reading
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