New Collaboration with the University of North Carolina at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy

Gene therapy represents an exciting new frontier being explored for treating a number of diseases. Currently, gene therapy is being used in a clinical trial to treat one of the rare forms of inherited neuropathy (IN), giant axonal neuropathy (GAN). Because of the...

TD Bank Five boro Tour: May 7, 2017

Sign up for TD Five Boro Bike Tour Today! For the eighth year in a row, HNF will be participating as a Charity Partner in the 2017 TD Bank Five Boro Bike Tour! We are thrilled to again be a part of this extraordinary event where participants bike through all five New...

Set Sail For CMT: Saturday June 17, 2017

On June 17, 2017 in New York City, HNF will be kicking off our inaugural Manhattan sunset cruise for a night filled with food, drinks, music and exclusive auction items. Enjoy three levels of dancing, full-service bars, lounges, floor to ceiling windows and...

Disease Awareness Problem

Charcot-Marie-Tooth Disease Awareness Problem from Hereditary Neuropathy Foundation on Vimeo. If you walked up to a group of people in your town, your city, your school, or your neighborhood…and asked them if they ever heard about Multiple Sclerosis, the majority...

Neurotoxin Rx wallet card

Individuals affected with neuropathic diseases, such as CMT, may be more vulnerable to the effects of certain medical conditions, stresses, and medications. A small number of medications are known to cause damage to nerves or cause neuropathy. These drugs can act as...

Tips on Managing Chronic Pain

Did you know? More than 130 million Americans suffer from chronic pain. Chronic pain is a serious problem  that shouldn’t be ignored. If you are experiencing chronic pain, it’s important to discuss your physical and emotional symptoms related to your pain with all...

How Yoga Can Help Charcot-Marie-Tooth Patients

From “hot yoga” to paddleboard yoga, mantra chanting to meditation, the ancient spiritual practice of yoga has exploded into a wide range of styles and disciplines in Western culture. It’s hard not to pass by a yoga studio in your town, or hear about the latest celebrity to take up the popular practice.

Top 10 Ways to Spread CMT Awareness

“You have what?” This is a common response when you tell someone you have Charcot-Marie-Tooth disease. We don’t just have CMT: we have a disease name awareness problem! How can we, together as a community of patients, caregivers, and healthcare professionals, work to...

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