Disease Awareness Problem

Charcot-Marie-Tooth Disease Awareness Problem from Hereditary Neuropathy Foundation on Vimeo. If you walked up to a group of people in your town, your city, your school, or your neighborhood…and asked them if they ever heard about Multiple Sclerosis, the majority...

Neurotoxin Rx wallet card

Individuals affected with neuropathic diseases, such as CMT, may be more vulnerable to the effects of certain medical conditions, stresses, and medications. A small number of medications are known to cause damage to nerves or cause neuropathy. These drugs can act as...

Tips on Managing Chronic Pain

Did you know? More than 130 million Americans suffer from chronic pain. Chronic pain is a serious problem  that shouldn’t be ignored. If you are experiencing chronic pain, it’s important to discuss your physical and emotional symptoms related to your pain with all...

How Yoga Can Help Charcot-Marie-Tooth Patients

From “hot yoga” to paddleboard yoga, mantra chanting to meditation, the ancient spiritual practice of yoga has exploded into a wide range of styles and disciplines in Western culture. It’s hard not to pass by a yoga studio in your town, or hear about the latest celebrity to take up the popular practice.

Top 10 Ways to Spread CMT Awareness

“You have what?” This is a common response when you tell someone you have Charcot-Marie-Tooth disease. We don’t just have CMT: we have a disease name awareness problem! How can we, together as a community of patients, caregivers, and healthcare professionals, work to...

Holiday greetings to you and your family at this most wonderful time of the year. At HNF, all of us want to express our immense gratitude to you for being a part of this ground-breaking year for the entire CMT community! As I continue to fight for CMT awareness,...

HNPP Study Available for HNF Members

Ayse Deniz Elmali, MD is a neurologist and a researcher. Her never-ending intellectual curiosity has led her first to Istanbul University, Cerrahpasa Medical Faculty and then to residency at the same university. Being in love with the complexity of the human nervous...

January 27, 2017 – Bridge/Brunch Fundraiser

Charity Card Party Brunch and Boutique

Please join us January 27, 2017 at 10:00 at the Broken Sound Country Club, Boca Raton Florida. Join us for an exquisite brunch and card party to benefit the H.E.L.P fund/HNF at Broken Sound Country Club in Boca Raton, FL.

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