We’re Partnering With The Mighty!

We're thrilled to announce a new partnership that will bring our resources in front of The Mighty's wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health community...

Calling Everyone With CMT/IN

CMT/Inherited Neuropathies Patient-Reported Survey Needs You to Advance Therapies HNF has launched a new Patient-Reported Research Study to advance therapies for CMT and inherited neuropathies (IN) in an effort to collect comprehensive data for a better understanding...

Tips for Living with CMT

Living with Charcot-Marie-Tooth (CMT) disease can be a challenging journey. Symptoms can change over time and CMT patients must learn their strengths and limitations, and develop the support network they need throughout their personal journeys. Exercise &...

New Collaboration with the University of North Carolina at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy

Gene therapy represents an exciting new frontier being explored for treating a number of diseases. Currently, gene therapy is being used in a clinical trial to treat one of the rare forms of inherited neuropathy (IN), giant axonal neuropathy (GAN). Because of the...

TD Bank Five boro Tour: May 7, 2017

Sign up for TD Five Boro Bike Tour Today! For the eighth year in a row, HNF will be participating as a Charity Partner in the 2017 TD Bank Five Boro Bike Tour! We are thrilled to again be a part of this extraordinary event where participants bike through all five New...

Set Sail For CMT: Saturday June 17, 2017

On June 17, 2017 in New York City, HNF will be kicking off our inaugural Manhattan sunset cruise for a night filled with food, drinks, music and exclusive auction items. Enjoy three levels of dancing, full-service bars, lounges, floor to ceiling windows and...

Disease Awareness Problem

Charcot-Marie-Tooth Disease Awareness Problem from Hereditary Neuropathy Foundation on Vimeo. If you walked up to a group of people in your town, your city, your school, or your neighborhood…and asked them if they ever heard about Multiple Sclerosis, the majority...

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