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- Apr 1, 2013 -
BERNADETTE SCARDUZIO: The Face of Charcot-Marie-Tooth Disease: BERNADETTE SCARDUZIO:
The Face of Charcot-Marie-Tooth Disease
BY DEBORAH A. PIERRO of I.D.E.A.L Magazine
In mid-October 2012, I had the opportunity to interview Bernadette Scarduzio (Bern). S Read More... - Aug 15, 2012 -
Get the Latest Neurology News!: Thanks to the American Academy of Neurology (AAN), obtaining the latest information on neurological conditions is a cinch. AAN’s magazine Neurology Now is available at www.NeurologyNow.com and offe Read More... - Jun 11, 2012 -
Film Release: Bernadette!: The Hereditary Neuropathy Foundation (HNF) is thrilled to announce the completion of the film, “Bernadette.” The documentary, depicting the true-life experience of now 33 year old Bernadette Scarduzi Read More... - Jan 27, 2012 -
More Magazine features story on Charcot-Marie-Tooth: A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth. From training for the New York ma Read More... - Dec 15, 2011 -
Charcot-Marie-Tooth Awareness: In the News!: NBC10 in Philadelphia featured a story on Bernadette Scarduzio, one of HNF's most prominent partners who is the subject of an upcoming documentary, Bernadette. HNF sponsored the making of this docume Read More... - Sep 3, 2011 -
New York Times features Voice of CMT: The New York Times recently published an article about those living with Charcot-Marie-Tooth disease. Several members of the Hereditary Neuropathy Foundation were featured, including Allison Moore, Ma Read More...
Awareness of Charcot-Marie-Tooth is absolutely critical for health care professionals, educators, and the general public in order to provide support and comprehensive resources for those living with CMT. Increasing awareness is a broad task, involving education, training, advocacy and yes, publicity. When CMT is in the news, when people with CMT are in movies or books, then awareness, understanding and support result. HNF is committed to fostering awareness of CMT while racing to find new treatments and a cure.
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