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Di Billick Runs 10k for Team CMT
“The 10K was insane,” recalls Di Billick of her participation on April 7, 2012 in the Ringing in Spring 10K Run in Valparaiso, IN. Di, a model and actress, was away on an unexpectedly extended film shoot. She returned home… Continue reading
June 3, 2012: Wine, Beer and Vodka Tasting
Join us on Sunday, June 3, 2012 in Wolcott, CT for a Wine, Beer and Vodka tasting to raise money and awareness of Charcot-Marie-Tooth. This fundraiser is organized by Tracey Rotella and Staci Tumel in honor of Erin Hughes, a… Continue reading
April 16, 2012: Team CMT Leader to Run Boston Marathon
When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is… Continue reading
May 6, 2012: Five Boro Bike Tour
HNF is thrilled to have been chosen this year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research… Continue reading
Sept. 27, 2012: Sixth Annual Golf Fundraiser
Save the date and stay tuned for more details on the Hereditary Neuropathy Foundation’s Sixth Annual Golf Fundraiser. This is one of our biggest events of the year, and we are planning for the most amazing golf event yet!
This… Continue reading
Spotlight on the Mattheiss Family
Last summer we introduced you to the Mattheiss Family of Millington, NJ. Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community. Soon after Jacob, now 13 and an avid fencer, was… Continue reading
July 2012: Hamptons Spin-a-thon!
It’s coming! The annual Hamptons Spin for the Cure is happening once again, and you don’t want to miss it!
We’ll have all the details as the event gets close. Stay tuned!
Watch the video from last year, and get ready to spin!
March 31, 2012–Spin for the Cure, New Jersey!
Join us for our first Spin for the Cure of 2012!
On Saturday, March 31st from 10am-12pm we’ll be spinning away at The Club at Morristown, 118 Headquarters Plaza, Morristown, NJ. There will be two 45 minute… Continue reading
Oct 21, 2012: Grace’s Courage Crusade Brunch
We’ve set the date, now we need you to do the same! Don’t miss this fantastic event! The atmosphere of scenic Newport, RI, the fabulous food, and the desserts! You have to experience it to understand why folks keep coming… Continue reading
More Magazine features story on Charcot-Marie-Tooth
A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth. From training for the New York marathon, to being diagnosed with cancer, through chemotherapy that brought out severe… Continue reading
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