Charcot Marie Tooth Disease - CMT Disease - Hereditary Neuropathy

The Hereditary Neuropathy Foundation (HNF) is a non-profit 501(c)3 which raises awareness, funds scientific research, and educates the medical community as well as the general public about Charcot-Marie Tooth disease (CMT), offering people with CMT, and their families, medical information and emotional support.

HNF promotes and supports both clinical and primary CMT research. We are also actively committed to increasing awareness of the disease through all available media outlets, including print, radio and television as well as fundraising programs. While our members give a face to CMT, HNF provides a strong, organizational voice to those living with CMT all over the world.

HNF will continue to educate physicians, along with the entire medical community about CMT. We will also continue our pledge to become the definitive information outlet for the general public about this important, often misunderstood disease. Our innovative, highly proactive website is committed to presenting up-to-date information, resources, support, international discussion forums, Q & A’s, along with numerous helpful products and services that are available to individuals living with CMT.

Our President, Allison T. Moore founded the Hereditary Neuropathy Foundation upon learning of her sudden onset of CMT, which was brought on after she received a chemotherapy agent (Vincristine) that is toxic and contraindicated for people with CMT or for those with a family history of CMT. Allison is dedicated to raising significant funds that will lead the way to a cure for CMT.

HNF is supported by a wide cross-section of medical experts, researchers, professionals who work with the disabled, and a huge network of individuals and families from all walks of life. We are governed by our Board of Directors comprised of a dedicated group of professionals, each of whom offers a strong commitment to supporting HNF, our vision, mission and operational platform.