Founder, CEO | [email protected]
Allison Moore founded HNF in 2001 in an effort to improve the quality of life for people with Charcot-Marie-Tooth. She divides her time between her homes in Manhattan and Amagansett, NY, with her husband, Robert, and her two young sons. Moore founded HNF in 2001 after a hospital mishap in which she was treated with medications that exacerbated her CMT symptoms and made her legs weak and imbalanced. Her goal was to create a foundation that would lead to the development of treatments and a cure for CMT and increased awareness so the world would recognize CMT as a household name.
Fundraising Coordinator | [email protected]
Courtney joined HNF in February 2012 to assist with fundraising, database management, and financial reporting. In addition, Courtney provides support to our many fundraising event coordinators and to the growing membership of Team CMT. Finally, she manages social media outreach for HNF. Familiar with the effects of CMT on members of her own family, Courtney has seen first-hand the importance of raising awareness about this disorder. She shares our goal to create a supportive community for those living with CMT.
Courtney earned her B.S. from Salve Regina University in Rhode Island. Her experience in database management and special education makes her a wonderful asset to HNF. A married mom of three children, Courtney enjoys going to the beach with her family and traveling.
Sean Ekins, PhD, DSc
Chief Science Officer
Sean divides his time between the Hereditary Neuropathy Foundation, Hannah’s Hope Fund, Jonah’s Just Begun and CSO at Collaborative Drug Discovery. He graduated from the University of Aberdeen; receiving his M.Sc., Ph.D. and D.Sc. in Clinical Pharmacology. He was a postdoctoral fellow at Lilly Research Laboratories. He has worked as a senior scientist at Pfizer, Lilly, Associate Director of Computational Drug Discovery at Concurrent Pharmaceuticals, Inc. and Vice President of Computational Biology at GeneGo (now Thomson Reuters). Sean is Adjunct Professor, Division of Chemical Biology and Medicinal Chemistry, UNC Eshelman School of Pharmacy, University of North Carolina at Chapel Hill; Adjunct Associate Professor, School of Pharmacy Department of Pharmaceutical Sciences, University of Maryland and Adjunct Professor in the Department of Pharmacology at Rutgers University– Robert Wood Johnson Medical School, Piscataway, NJ. Sean is on the scientific advisory board for several companies and editorial boards of the Journal of Pharmacological and Toxicological Methods, Drug Discovery Today, Mutation Research Reviews, and Pharmaceutical Research. He has authored or co-authored >220 peer reviewed papers and book chapters as well as edited four books for Wiley. Sean co-developed the mobile apps ODDT (Open Drug Discovery Teams) and TB Mobile and has been awarded multiple NIH grants.
Cherie joined HNF in July 2013 as our Accounting Manager. She comes to us with a wealth of experience both in the corporate and non-profit sector. Cherie earned her BB.A. in Marketing Communications from Mary Baldwin College. She shares our passion to help all that suffer with Charcot-Marie-Tooth.
A married mom of two children, Cherie enjoys yoga and traveling with her family.
Social Media Coordinator
Bernadette (Berns) comes to HNF with a wealth of knowledge about Charcot-Marie-Tooth (CMT). She plans to assist HNF with social media and interact daily with patients and family members that are affected by CMT. She is a Certified Personal Trainer and received her certification from the National Personal Training Institute (NPTI) but had to halt training due to CMT. She also worked for her family business Cuz N’ Company Salon and Spa that her dad started 30 years ago and took on many roles throughout the years. In addition she worked in the community as a teacher’s aide for Family Support Services. Berns is the star of the “Bernadette Documentary” which follows her journey with CMT. She is social media guru and is looking forward to continue the upward growth of HNF’s social media. Bern resides in Drexel Hill, PA and enjoys spending time with her family and dogs.