The Foundation Staff
Allison Moore, founded HNF in 2001 in an effort to improve the quality of life for people with Charcot-Marie-Tooth. She divides her time between her homes in Manhattan and Amagansett, NY, with her husband, Robert, and her two young sons. Allison was diagnosed with CMT after a hospital mishap in which she was treated with medications that exacerbated her CMT symptoms and made her legs weak and imbalanced. Her goal was to create one of the best storehouses of information about CMT in the country and also to raise awareness of CMT to both the general public and to medical professionals. Featured in New York Magazine, People, Scientific American, and local radio/TV, Allison is a national champion for increasing awarness of CMT and improving the quality of life for those who live with the disease.
Courtney joined HNF in February 2012 to assist with fundraising, database management, and financial reporting. In addition, Courtney provides support to our many fundraising event coordinators and to the growing membership of Team CMT. Finally, she manages social media outreach for HNF.
Familiar with the effects of CMT on members of her own family, Courtney has seen first-hand the importance of raising awareness about this disorder. She shares our goal to create a supportive community for those living with CMT.
Courtney earned her B.S. from Salve Regina University in Rhode Island. Her experience in database management and special education makes her a wonderful asset to HNF.
A married mom of three children, Courtney enjoys going to the beach with her family and traveling.
Keri joined HNF in 2011 to write website content. She brings a wealth of experience in writing, teaching and community activism, earning her B.A. in journalism from New York University. She also provides support to the School Outreach Program and fundraising events. She lives outside Washington, DC with her husband and three amazing children.