Monthly Archives: April 2013

School Outreach Program Spreads Its Message Nationwide

Arlene has been on the road again!

We visited fourteen schools in our home state of Rhode Island in early April. Wow, was it good to go home again!

From Narragansett to Quidnessett, Coventry to Providence, Warwick to Johnston, we… Continue reading

Thursday, November 24th & Thursday December 5th – Saturday December 7th Shop Til You Drop Americana Manhasset, New York

Holiday Shopping Benefit – Shop Till You Drop

Help support the Hereditary Neuropathy Foundation by doing your holiday shopping at participating Americana Manhasset and Wheatley Plaza stores from Sunday, November 24th 11am – 6pm and Thursday, December 5th to Saturday… Continue reading

Meet Abby Ziff, Sales Director, Strategic Accounts, WebMD.

Meet Abby Ziff, Sales Director, Strategic Accounts, WebMD. CMT advocate who is passionate and dedicated to helping all of us in our mission to bring awareness and raise funds to cure CMT.

You don’t have CMT nor does anyone in… Continue reading

One Woman’s Success with Surgery

One Woman’s Success with Surgery

The only thing Sarah Clauss has given up because of Charcot-Marie-Tooth (CMT) is waterskiing.  “I live on the lake so I attempted waterskiing but…,” jokes the 25 year old, Lake Wallenpaupack, Pennsylvania resident, “it wasn’t… Continue reading

A Passionate Plate: No Bake Banana-Peanut Butter Granola Bars

I’ve been on a banana kick lately. I just can’t get enough of them. Does that ever happen to you? I. Crave. Bananas! Banana bread. Vana-rama Smoothie. Banana and Greek Yogurt. So, when I discovered Nothing But Banana, Flattened at… Continue reading

Meet your Team CMT Manager

Meet your Team CMT Manager

You must always carry an unsolvable problem in your heart.”- Persian Poet Rumi

CMT is the unsolvable problem I carry in my heart.  I didn’t even know how to pronounce it when I first… Continue reading

BERNADETTE SCARDUZIO: The Face of Charcot-Marie-Tooth Disease

BERNADETTE SCARDUZIO:

The Face of Charcot-Marie-Tooth Disease

BY DEBORAH A. PIERRO of I.D.E.A.L Magazine

In mid-October 2012, I had the opportunity to interview Bernadette Scarduzio (Bern). She is a lovely young woman who suffers from Charcot-Marie-Tooth (CMT), an inherited disease… Continue reading

Assay Depot And Rare Genomics Institute Award Prizes To Study 26 Rare Diseases

Assay Depot And Rare Genomics Institute Award Prizes To Study 26 Rare Diseases

More Than $500,000 Worth of Services, Reagents, and Prize Money

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SAN DIEGO and ST. LOUIS, Feb. 28, 2013 /PRNewswire/ — In recognition of Rare Disease Day, Assay Depot… Continue reading
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