Bracing for Helios®
Lori didn’t plan to visit casinos or nightclubs during her trip to Las Vegas, Nevada in October. But when she boarded a 6:00 A.M. flight with her boyfriend, photographer Jerry, she was a little concerned that she was taking a… Continue reading
HNF Charity Partner for the MetroTex Charitable Trust Run For Fun Irving, Texas: Saturday May 3, 2014
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MetroTex Association of REALTORS Charitable Trust
DFW Get Fit 10K ~ 5K ~1M Fun Run – Saturday May 3, 2014
9:00am – 12:00pm
The Hereditary Neuropathy Foundation (HNF) has been chosen as the Charity Partner for the MetroTex Charitable Trust… Continue reading
Personal Profile: Estela Lugo, Designing Décor
Designing Décor that Helps
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers. When they were diagnosed with Charcot-Marie-Tooth Disease (CMT) Lugo… Continue reading
Dr. Robert Baloh Answers Our Questions About iPS Cell Research
Big news is happening on a cellular level at Cedars-Sinai Medical Center’s Regenerative Medicine Institute in Los Angeles, CA. Robert H. Baloh, MD PhD, Director of Neuromuscular Medicine, in conjunction with Patrick D. Lyden, MD Neurology Dept. Chair, and Clive… Continue reading
March 2013: Arlene sequel available!
Arlene, the Rebel Queen will be available in March! You can get a copy on Amazon, Barnes and Noble, or most other retailers and wholesalers. Bulk orders for your school can be placed directly through HNF. Contact Carol… Continue reading
HNF Charity Partner: TD Five Boro Bike Tour May 5, 2013
HNF is thrilled to have been chosen for the 3rd year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised… Continue reading
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