Monthly Archives: January 2013

Bracing for Helios®

Loirpicture2Lori didn’t plan to visit casinos or nightclubs during her trip to Las Vegas, Nevada in October.  But when she boarded a 6:00 A.M. flight with her boyfriend, photographer Jerry, she was a little concerned that she was taking a… Continue reading

September 25, 2014: 2nd Annual Dick Sharpe Memorial Golf Outing

We are pleased to announce the Hereditary Neuropathy Foundation’s Second Annual Dick Sharpe Memorial Golf Outing – in memory of the recent passing of our dear friend, father & board member – to take place at the prestigious North Hempstead Country… Continue reading

Personal Profile: Estela Lugo, Designing Décor


Designing Décor that Helps

As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers.   When they were diagnosed with Charcot-Marie-Tooth Disease (CMT) Lugo… Continue reading

Dr. Robert Baloh Answers Our Questions About iPS Cell Research

Big news is happening on a cellular level at Cedars-Sinai Medical Center’s Regenerative Medicine Institute in Los Angeles, CA.  Robert H. Baloh, MD PhD, Director of Neuromuscular Medicine, in conjunction with Patrick D. Lyden, MD Neurology Dept. Chair, and Clive… Continue reading

March 2013: Arlene sequel available!

Liu_RebelQueen_FrontArlene, the Rebel Queen will be available in March! You can get a copy on Amazon, Barnes and Noble, or most other retailers and wholesalers.  Bulk orders for your school can be placed directly through HNF. Contact Carol… Continue reading

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